International HHT Guidelines
International HHT Guidelines About the HHT Guidelines Conference Topic Area Overview Checklists & Fact Sheets Guidelines Publication Click to request a free…
MoreProvider Resources
Provider Resources Navigating an HHT diagnosis doesn’t have to be difficult. Our comprehensive resource library offers a breadth of information and resources so…
MorePatient Resources
Patient Resources Whether you are newly diagnosed, a knowledgeable patient or somewhere in between, search our comprehensive resource library for information an…
MoreIVF and Preimplantation Genetic Testing for HHT (recorded)
Katie Wusik Healy, LGC, MS, Genetic Counselor at the Cincinnati HHT Center of Excellence, talks about pre-implantation genetic testing (PGT), including what you…
Direct LinkNOSTRIL Trial (Doxycycline) – Nose bleeding
NOSTRIL Trial A Randomized Trial of Doxycycline for HHT-Related Epistaxis (Nose Bleeding) Home » Resources Advanced Search Study Summary Doxycycline, an inexpe…
MoreHow might HHT affect my lifestyle?
How might HHT affect my lifestyle? Home » Resources Advanced Search Cure HHT does not provide medical advice, nor does the printing of these answers constitut…
MoreTreatment of HHT
Treatment of HHT Home » Resources Advanced Search Most major manifestations of HHT, including AVMs and ruptured telangiectases, are very treatable. They cannot…
MoreScreening Guidelines
Screening Guidelines There are hidden manifestations of HHT that can contribute to life-threatening events. Home » Resources Advanced Search What are Screening…
MoreSigns and Symptoms
Signs & Symptoms Home » Resources Advanced Search Knowing signs and symptoms of HHT leads to a faster diagnosis. Some people with HHT may show almost no signs o…
MoreOur Impact
Our Impact Home » Resources Advanced Search Since its inception in 1991, Cure HHT has been working tirelessly to raise awareness about HHT, improve treatments,…
MoreLet’s Get Personal – HHT in Women (recorded)
Dr. Els de Gussem, Director of the HHT Center of Excellence at Grace Hospital AMC in Winnipeg, Canada, takes an in-depth look at the effects of HHT on the chang…
MoreOutcomes of Pregnancy in Women with HHT
Obstetrics & Gynecology. Authors: de Gussem, Els M. MD; Lausman, Andrea Y. MD, FRCPC; Beder, Aarin J. MD, CFPC; Edwards, Christine P. BSc; Blanker, Marco H. MD,…
MoreHereditary Hemorrhagic Telangiectasia and Risks for Adverse Pregnancy Outcomes
American Journal of Medical Genetics. Authors: Karen Wain, Karen Swanson, William Watson, Elysia Jeavons, Amy Weaver, and Noralane Lindor. This article can be p…
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