COVID-19 Reliable Resources
When learning about COVID-19, it is important that you receive reliable information from vetted sources about COVID-19.
MoreMy HHT Tracker – URL Links
My HHT Tracker app allows you to educate yourself about HHT and track your health at no cost to the user. The app is available on Apple iOS only. Use the app to…
MoreMy HHT Tracker Quick Guide
My HHT Tracker app allows you to educate yourself about HHT and track your health at no cost to the user. The app is available on Apple iOS only. Use the app to…
MoreLiving with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia
By Sara Palmer, PhD In this recently published book, psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health condition…
MoreExplanation of HHT and the Troubles Caused Throughout the Body
A simple, visual explanation of HHT and how the disease can impact the body. You can use this resource to educate yourself, family members, school nurses and te…
MoreGlossary of HHT Terms
Your Guide to HHT Medical Terminology. HHT impacts multiple organs and is defined by a variety of medical terms. To advocate for your healthcare you need to und…
MoreEpistaxis Severity Score
The ESS was developed through a Cure HHT research grant. This online tool is to calculate the severity score of nosebleeds. Want to know if your nosebleed treat…
MoreEpistaxis Journal
Track your nosebleeds with this journal developed by an ENT specializing in HHT. It is important to give your doctor an accurate picture of your nosebleed histo…
MoreDifference Between Social Security Income (SSI) and Social Security Disability Insurance (SSDI)
Are you disabled? Learn the difference between two federal government assistance programs, Supplemental Security Income (SSI) and Social Security Disability Ins…
MoreHow to Appeal Health Insurance Denial
Simple instructions to follow if your health insurance claim has been denied.
MoreState Insurance Regulator Roster (2014)
Contact your local insurance regulator if your insurance company isn’t treating you fairly. The State Insurance Regulator offices enforce laws and regulations f…
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