Resource Library

Your one stop shop for the latest HHT information and resources.
Explore resources for:

Search and Explore HHT Resources

Welcome to the Cure HHT Resource Library - a comprehensive library of the latest HHT information, fact sheets, publications, videos and more. Below you'll find our most popular resources listed first, and you can use the drop-down menus to filter by audience, topic or type. Use the search field to search by keyword.

Having trouble finding something? Contact us and let us know how we can help connect you to the information you need.

  • Reset

Scientific Literature

VEGF Neurtalization can Prevent and Normalize Arteriovenous Malformations in an Animal Model for HHT2

Scientific Literature

Hemorrhage-Adjusted Iron Requirements, Hematinics and Hepcidin Define HHT as a Model of Hemorrhagic Iron Deficiency

Scientific Literature

Symptomatic Liver Involvement in Neonatal Hereditary Hemorrhagic Telangiectasia

Patient Tool

Difference Between Social Security Income (SSI) and Social Security Disability Insurance (SSDI)

Scientific Literature

Anaesthetic Management of a Patient with Osler-Weber-Rendu’s Syndrome Posted for Young’s Procedure

Scientific Literature

Histogram Flow Mapping with Optical Coherence Tomography for In Vivo Skin Angiography of HHT

Organization

National Organization for Rare Disorders (NORD)

Scientific Literature

Bevacizumab: Finding its Niche in the Treatment of Heart Failure Secondary to Liver Vascular Malformations in HHT

Scientific Literature

A Brain Abscess Following Dental Extractions in a Patient with HHT

Webinar

HHT: Caring for the Younger Generation (recorded)

Scientific Literature

Case 10-2010: A 37 Year Old Woman with Weakness and a Mass in the Brain

Webinar

ABC’s of AVMs (recorded)

Scientific Literature

An Epistaxis Severity Score for HHT

Scientific Literature

Liver Transplantation for Cardiac Failure in Patients with HHT

Webinar

Pathophysiology of HHT and Advances in HHT Research (recorded)

Scientific Literature

Brain Vascular Malformation Consortium: Overview, Progress, and Future Directions