Cure HHT Resource Library

Your one stop shop for the latest HHT information and resources.
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Welcome to the Cure HHT Resource Library - a comprehensive library of the latest HHT information, fact sheets, publications, videos and more. Below you'll find our most popular resources listed first, and you can use the drop-down menus to filter by audience, topic or type. Use the search field to search by keyword.

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Webinar

Cardiac and Liver Manifestations (recorded)

Scientific Literature

ABSTRACT: Effect of Topical Intranasal Therapy on Epistaxis Frequency in Patients with HHT. A Randomized Clinical Trial.

Webinar

What Does This All Mean to Me and My Family? (recorded)

Scientific Literature

Bevacizumab in HHT-Associated Epistaxis: Effectiveness of an Injection Protocol Based on the Vascular Anatomy of the Nose

Scientific Literature

Dose-Response Relationship of Bevacizumab in HHT

Scientific Literature

Antiplatelet and Anticoagulant Agents in HHT

Scientific Literature

HHT Research Publications (2004-2013)

Organization

National Organization for Rare Disorders (NORD)

Webinar

What’s the Skinny on HHT? (recorded)

Scientific Literature

A Brain Abscess Following Dental Extractions in a Patient with HHT

Scientific Literature

Clinical Outcomes of Pulmonary Arterial Hypertension in Patients Carrying an ACVRL1 (ALK1) Mutation

Scientific Literature

Anesthetic Considerations for the Patient with HHT (Osler-Weber-Rendu Syndrome)

Scientific Literature

Giant High-Flow Type Pulmonary Arteriovenous Malformation: Coil Embolization with Flow Control by Balloon Occlusion and an Anchored Detachable Coil

Article

Health Benefits of Geranium Essential Oil

Scientific Literature

JAMA Clinical Challenge – Red Papules on the Tongue of a Patient with Hemiparesis

Scientific Literature

Efficacy of a Topical Sesame/Rose Geranium Oil Compound in Patients with HHT Associated Epistaxis (Poster)