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Welcome to the Cure HHT Resource Library - a comprehensive library of the latest HHT information, fact sheets, publications, videos and more. Below you'll find our most popular resources listed first, and you can use the drop-down menus to filter by audience, topic or type. Use the search field to search by keyword.

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Scientific Literature

Hereditary Hemorrhagic Telangiectasia: Diagnosis and Management

Scientific Literature

Low Serum Iron Levels are Associated with Elevated Plasma Levels of Coagulation Factor VIII and Pulmonary Emboli/Deep Venous Thromboses in Replicate Cohorts of Patients with HHT

Government

Centers for Disease Control and Prevention (CDC)

Organization

Clot Connect

Scientific Literature

Interventional Treatment of Pulmonary Arteriovenous Malformations

Scientific Literature

Giant High-Flow Type Pulmonary Arteriovenous Malformation: Coil Embolization with Flow Control by Balloon Occlusion and an Anchored Detachable Coil

Scientific Literature

HHT: An Overview of Diagnosis, Management and Pathogenesis

Scientific Literature

Clinical Outcomes of Pulmonary Arterial Hypertension in Patients Carrying an ACVRL1 (ALK1) Mutation

Scientific Literature

Ischaemic Strokes in Patients with Pulmonary Arteriovenous Malformations and HHT: Associations with Iron Deficiency and Platelets

Scientific Literature

Case 10-2010: A 37 Year Old Woman with Weakness and a Mass in the Brain

Scientific Literature

Why is Genetic Screening for Autosomal Dominant Disorders Underused in Families? The Case of Hereditary Hemorrhagic Telangiectasia

Scientific Literature

Impact of Pulmonary Arterivenous Malformations on Respiratory-Related Quality of Life in Patients with HHT

Scientific Literature

Elevated Circulating microRNA-210 Levels in Patients with HHT and Pulmonary Arteriovenous Malformations: A Potential New Biomarker

Scientific Literature

Brain AVM Multiplicity Predicts the Diagnosis of HHT: Quantitative Assessment

Article

Low Iron Levels and Blood Clots in HHT

Webinar

ABC’s of AVMs (recorded)