Resource Library

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Welcome to the Cure HHT Resource Library - a comprehensive library of the latest HHT information, fact sheets, publications, videos and more. Below you'll find our most popular resources listed first, and you can use the drop-down menus to filter by audience, topic or type. Use the search field to search by keyword.

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Scientific Literature

Imaging of Hereditary Hemorrhagic Telangiectasia

Scientific Literature

Anesthetic Considerations for the Patient with HHT (Osler-Weber-Rendu Syndrome)

Webinar

HHT: Caring for the Younger Generation (recorded)

Scientific Literature

Anaesthetic Management of a Patient with Osler-Weber-Rendu’s Syndrome Posted for Young’s Procedure

Scientific Literature

Abstracts – 11th HHT International Scientific Conference (2015)

Scientific Literature

Improved Survival Outcomes in Cancer Patients with HHT

Scientific Literature

Detecting HHT: Dental Hygienists can improve health outcomes by recognizing the first symptoms of this genetic disorder

Scientific Literature

Bevacizumab in HHT-Associated Epistaxis: Effectiveness of an Injection Protocol Based on the Vascular Anatomy of the Nose

Scientific Literature

Bevacizumab: Finding its Niche in the Treatment of Heart Failure Secondary to Liver Vascular Malformations in HHT

Webinar

What’s the Skinny on HHT? (recorded)

Scientific Literature

Why is Genetic Screening for Autosomal Dominant Disorders Underused in Families? The Case of Hereditary Hemorrhagic Telangiectasia

Scientific Literature

Low Serum Iron Levels are Associated with Elevated Plasma Levels of Coagulation Factor VIII and Pulmonary Emboli/Deep Venous Thromboses in Replicate Cohorts of Patients with HHT

Scientific Literature

Clinical Outcomes of Pulmonary Arterial Hypertension in Patients Carrying an ACVRL1 (ALK1) Mutation

Scientific Literature

Complications from Office Sclerotherapy for Epistaxis Due to HHT (Osler-Weber-Rendu)

Scientific Literature

Asymptomatic Pulmonary Arteriovenous Malformations in Children with HHT

Scientific Literature

A Long Diagnostic Delay in Patients with HHT