Cure HHT Resource Library

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Welcome to the Cure HHT Resource Library - a comprehensive library of the latest HHT information, fact sheets, publications, videos and more. Below you'll find our most popular resources listed first, and you can use the drop-down menus to filter by audience, topic or type. Use the search field to search by keyword.

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Scientific Literature

Ischaemic Strokes in Patients with Pulmonary Arteriovenous Malformations and HHT: Associations with Iron Deficiency and Platelets

Scientific Literature

Office-based Sclerotherapy for Recurrent Epistaxis Due to Hereditary Hemorrhagic Telangiectasia: A Pilot Study

Scientific Literature

Long-Term Therapy with Bevacizumab in HHT

Scientific Literature

Asymptomatic Pulmonary Arteriovenous Malformations in Children with HHT

Scientific Literature

Cerebral Abscesses among Danish Patients with HHT

Scientific Literature

Brain Vascular Malformation Consortium: Overview, Progress, and Future Directions

Newsletter

HHT Scientific and Medical Newsletter – Frontlines Volume 1 (2017)

Scientific Literature

Outcomes of Pregnancy in Women with HHT

Webinar

Brain Vascular Malformations in HHT: Knowledge is the Key (recorded)

Scientific Literature

Hereditary Hemorrhagic Telangiectasia: Genetics and Molecular Diagnostics in a New Era

Scientific Literature

Symptomatic Liver Involvement in Neonatal Hereditary Hemorrhagic Telangiectasia

Webinar

What Does This All Mean to Me and My Family? (recorded)

Scientific Literature

A Brain Abscess Following Dental Extractions in a Patient with HHT

Scientific Literature

Cerebrovascular Manifestations of Hereditary Hemorrhagic Telangiectasia

Scientific Literature

Low Serum Iron Levels are Associated with Elevated Plasma Levels of Coagulation Factor VIII and Pulmonary Emboli/Deep Venous Thromboses in Replicate Cohorts of Patients with HHT

Scientific Literature

HHT (Rendu-Osler-Weber) and Infectious Diseases: An Underestimated Association