Raising HHT Awareness in Puerto Rico

CURE HHT and THE UNIVERSITY OF PUERTO RICO SCHOOL OF MEDICINE ARE EXCITED TO ANNOUNCE

HHT Grand Rounds
Tuesday, June 11, 2019
8:00 AM – 10:00 AM

Spread the word …. Share this printable flyer!

 

Location
Conference Room A and B
Pediatric Hospital at Centro Medico
University of Puerto Rico Medical Science Campus
San Juan, Puerto Rico  00921

Complimentary Breakfast provided by Gerber® Medical Sales will be served from 7:00 am – 7:45 am
Presenters will be available for additional questions from 10:00 am – 11:00 am

Hereditary Hemorrhagic Telangiectasia (HHT), aka Osler-Weber-Rendu Syndrome, affects 1 in 5,000 people and is typically misdiagnosed!

 


As a healthcare provider, would you consider an HHT diagnosis if a patient presented with …

  • telangiectasia on the lip, mouth or skin
  • spontaneous nosebleeds or a family history of nosebleeds
  • chronic anemia
  • recurring iron infusions or blood transfusions
  • a brain or lung AVM
  • unexplained brain abscess

 


Before you can treat HHT, you need to learn to identify and screen it.

Pediatric pulmonologist, Dr. Wilfredo De Jesus Rojas, pediatric hematologist, Dr. Enid Rivera, and pediatric chair, Dr. Melvin Bonilla, from the Pediatric Hospital at Centro Medico, were instrumental in bringing HHT awareness and education to the University of Puerto Rico Medical Science Campus via the HHT Grand Rounds. Dr. Rojas is currently treating children from four HHT families.

Dr. Bonilla, Dr. Rivera and Dr. Rojas recognize the importance of detection and screening within the medical community. Identification is the biggest challenge because HHT is a disorder that impacts the patient throughout his or her life and can lead to serious complications or death if not detected. HHT runs in families, so the odds of more than one person suffering from the disorder are great.

 


Become part of the Global HHT Community and JOIN US on June 13-16, 2019
Wyndham Grand Rio Mar Puerto Rico Golf & Beach Resort

Learn more at http://science.hhtconference.org