Useful Links to Outside Organizations
Links to outside medical and government organizations that provide information useful for HHT patients.
Have questions about anemia? The American Society of Hematology has the answers. The American Society of Hematology (ASH) is committed to helping practicing hematologists provide quality care to patients, continue their professional development, and…More
Have questions about anemia? The American Society of Hematology has the answers. The American Society of Hematology has developed resources for the patient section of their website to educate the public about the importance of healthy blood and to ra…More
Clot Connect is an education project of the UNC Blood Clot Outreach Program in the UNC Hemophilia and Thrombosis Center. Clot Connect’s mission is to increase knowledge of blood clots, clotting disorders and anticoagulation by providing education and…More
Tissue or whole body donation allows advancements in research that aren’t possible using animal or artificial models. The mission of AGR’s caring & compassionate non-profit program is to provide expertly prepared anatomical gifts to scientists, c…More
The Pulmonary Hypertension Association (PHA) is a 501(c) organization non-profit support, education, advocacy and awareness association for pulmonary hypertension (PH). It provides information to the public about the illness and acts as a support gro…More