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The Use of US Health Insurance Data for Surveillance of Rare Disorders: HHT
Genetics in Medicine (2014); Authors: Scott D. Grosse, PhD, , Sheree L. Boulet, DrPH, MPH, , Althea M. Grant, PhD, Mary M. Hulihan, MPH, and Marie E. Faughnan, MD…
Read MoreHHT Frontlines Scientific Newsletter (2018)
February 2018. Cure HHT’s biannual newsletter that centralizes and summarizes select and important publications about HHT for patients, clinicians, and scientists….
Read MoreHazardous Natural Health Products in HHT
…Cortes, Pharmacist at the St. Michael’s Hospital HHT Center in Toronto, Canada, to provide a list of common natural health products that have been found to increase the possibility of…
Read MoreSurgeon General’s My Family Health Portrait
Completing your family tree is a critical first step in identifying family members who may have inherited HHT. Provided by the Surgeon General, “My Family Health Portrait” is an internet-based…
Read MoreHHT International Clinical Guidelines (2020)
Published by the Annals of Internal Medicine in 2020, the “Second International Guidelines for the Diagnosis and Management of HHT” is a comprehensive document to share with your physician. It…
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