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My HHT Nosebleed Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on…
Read MoreMy HHT Liver VM Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on…
Read MoreBedside to Bench: How the HHT Community Drives Research Initiatives (Recorded)
…lifting up the work that patient communities are doing to accelerate research and drive progress against rare diseases. The CZI Rare as One project is a two-year grant award that…
Read MoreMy HHT GI Bleeding Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on…
Read MoreMy HHT Diagnosis Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on…
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