HHT Diagnosis and Treatment Act

Lay Down the Cure HHT Law

The HHT Diagnosis and Treatment Act HR 1849 was introduced in the House of Representatives on April 16, 2015 as part of the 114th Congress.

The bill would be the first to create a federally led and financed initiative for early diagnosis and appropriate treatment of hereditary hemorrhagic telangiectasia.

The HHT DATA Act would require the Centers for Disease Control and Prevention to conduct surveillance initiatives, start an internal HHT resource center and conduct public awareness programs.

The act would also authorize the appropriation of $5 million per year for the next five years to be used to improve early detection, screening, diagnosis and treatment of HHT.

Our goal is to get as many legislators as possible to co-sponsor this bill! It's time to lay down the law for Cure HHT. 

Let's get the HHT DATA Act passed by the end of the year!

Don't forget to use your HHT DATA Act Factsheet.

U.S. House of Representatives

H.R. 1849
The HHT Diagnosis and Treatment Act of 2015 was introduced by U.S. Representative Ed Royce of California and U.S. Representative Jim Himes of Connecticut on April 16, 2015.

Co-Sponsors: 2/100

House of Representatives Sponsors:

Ed Royce (R – CA)
Jim Himes (D – CT)

House of Representatives Co-Sponsors:

Rosa DeLauro (D-CT)
Zoe Lofgren (D-CA)
Eleanor Norton (D-DC)
Dave Loebsack (D-IA)

Find your Representative


We are actively working on finding a senate champion for the HHT DATA cause!

Do you think your representative is right for the job? Let us know at 410-357-9932 or [email protected]

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