What the HHT?

A blog for the HHT community

Posts by Janice Jones

Holiday Reflections

November is one of my favorite months due to the beautiful change in the air with the crisp and cool mornings and nights; the gorgeous auburn colors; the beginning of tasty comfort foods such as hot apple cider and chili; the return of professional football and basketball; and finally, the Thanksgiving holiday and all of…

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Summer, Summer, Summertime and HHT

summer fruits

 Summer is kicked off with a bang for the Cure HHT family with HHT month and the various activities that take place during the month of June. However, while engaging in various outdoor fundraising activities that benefit the cause and enjoying the long and hazy, hot days of the season, there are particular precautions that…

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Here We Go Again: Follow-Up for a HHT Patient

I’m starting all over again with the poking and the long needles, and the fasting before blood work is taken, and the MRAs, MRIs and CTs with and without contrast, and so on and so on and so on… Unfortunately, this is the life of a person who deals with HHT. Regardless of how I…

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A New Year with Hope and Perseverance

2017

Happy New Year to the Cure HHT family, friends and supporters! I’m going to drop a quick note as I’m preparing to depart and visit my new granddaughter and first grandchild in Alabama. I’m so blessed to be strong enough to travel. My daughter’s pregnancy and delivery was successful and there were no issues or…

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Real Talk From the Heart

The past few months have been such a challenge and very difficult. At last check, my blood levels were an 8.7 and dropping. My iron saturation is below the lowest and I’m definitely not creating any hemoglobin (blood). I’m well aware that they have most likely dropped even more, and I need to verify this,…

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