What the HHT?

A blog for the HHT community

Posts by Allyson Clancy

Washington Post Feature: Zina Martinez Story

The Washington Post | November 17, 2018 Check out the Washington Post Health & Science section’s featured article about a HHT diagnosis, written by Sandra G. Boodman. This harrowing tale is about a mother, her children, and the race to be properly diagnosed with HHT. Read full article >   Cure HHT was instrumental in…

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My HHT Tracker iOS App is Ready to Download!

My HHT Tracker: An iOS App To Help You Manage Your HHT Cure HHT is excited to announce that the iOS App My HHT Tracker is ready to download for all North American HHT patients!     My HHT Tracker is a 21st century tool that allows patients to educate themselves about HHT, track health conditions, store health…

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How to Fundraise for Cure HHT on Facebook

This small, but mighty community can help Cure HHT deliver results for new HHT treatments, new HHT Centers of Excellence and new options that can help people manage their HHT much more quickly than ever before.   How? By sharing stories about their journey with HHT, advocating for this case and becoming a fundraiser on…

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Mom Prom Extravaganza to Benefit Cure HHT

When: Friday, October 26th from 6:00-9:00 PM Where: Faith Lutheran Church | Port Huron, MI Details: Join Diana Purdy and Rachel Miller as they take on Cure HHT’s 50 State Challenge and invite you to a Mom Prom Extravaganza in Michigan! Dust off your dance shoes and pull out that old prom, bridesmaid, or wedding dress –…

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