empowerMEnt: The Possibilities are Limitless with ME and Cure HHT


heather-bohannonHeather Bohannon, Director of Development for Cure HHT, has over 20 years of nonprofit experience. She has worked with national nonprofits, local grassroots fundraising, nonprofit chapter leadership and national peer-to-peer fundraising programs. Her career experiences provided significant opportunity to impact all aspects of nonprofit work. Heather’s analytical approach to fundraising is a tremendous asset to Cure HHT.


allyAllyson Clancy, Development Associate for Cure HHT, is our fundraising events guru and one of the people who can bring HHT awareness to your community. She comes with 5 years of experience in nonprofit administration, operations and fundraising, and has been affiliated with Cure HHT for over a decade. Ally manages all of our fundraising campaigns, and works with volunteers across the globe to create amazing HHT events. These events range in size and type, and all start with ideas from our HHT community. So, if you have an interest in creating an impact for HHT through a fundraising or awareness event, Ally is the one to make it happen.


lauren-linhardLauren Linhard is Cure HHT's Communications Associate. Prior to joining us two years ago, Lauren worked as a reporter for five years after receiving a journalism degree from American University. Lauren’s primary focus is on strengthening HHT awareness through digital and print mediums while expanding story sharing, legislative, media and event engagement.



To get involved in HHT awareness, call the Cure HHT office at 410-357-9932 or email [email protected]


The Year of Empowerment (2016) has been about taking charge of your healthcare by taking a stand for HHT legislation, participating in HHT research, strengthening HHT awareness and connecting with HHT Centers of Excellence.

As the Year of Empowerment comes to an end, Cure HHT wants to ensure you have everything you need to continue being your own advocate and strengthening awareness for HHT.  Though we are a diverse community, we achieve the most when working together. Together, the possibilities are limitless.

Originally presented at #HHTFamCon.

Webinar Highlights

  • Learn how to tell your story
  • Creative event ideas
  • Cure HHT resources for a successful event or awareness activity
  • Handout: Cure HHT contact information and resource links


  • SHARE this information and webinar link with your family members affected by HHT

Cure HHT

Cure HHT is the cornerstone of the HHT community, advancing one common hope - to give those affected by HHT a chance for a normal life. This webinar series is just one of many ways we accomplish this mission. Beginning in May 2016, Cure HHT members will have access to unlimited webinars, discounted conference registration and much more. This is one of two webinars offered this year that will be available to everyone. Please consider joining or renewing your Cure HHT membership so that you can participate in all activities within the HHT community.