Two years ago, the HHT Foundation focused its' advocacy efforts in specific targeted programs to benefit HHT research. We were successful in obtaining vascular malformations into the Defense Appropriations bill which includes HHT as a type of vascular malformation. With the U.S. Senate approval of the Omnibus Appropriations Act on December 13, 2014 and the President’s signature on the bill December 16, 2014, the HHT research community will now be able to compete for research grants from the Department of Defense’s Peer Reviewed Medical Research Program (PRMRP).
The bill includes “vascular malformations” among the list of eligible conditions that can be studied under the PRMRP. We anticipate that the PRMRP will issue a program announcement on the availability of funding and grant guidelines sometime in February or March 2015. The total amount of funding is approximately $240MM and 23 diseases, including HHT, are part of this program. It is important to note that non-U.S. researchers can be the lead on proposals. Examples can be found http://cdmrp.army.mil/search.aspx
Cure HHT will notify the scientific community as soon as the program announcement is issued. We anticipate that there will be strong collaborations among our global HHT research community.
We have worked hard through the years to get into this program. Now, the Cure HHT legislative activities are directed to strengthen our presence across several National Institutes of Health (NIH) Institutes and are in the process of putting those plans into place.
MARIANNE S. CLANCY, RDH, MPA