Launch New Website and Learn About HHT Brochure


New Website

The new website is now structured to include information for the newly diagnosed, tools and resources for patients and physicians to assist with the management and treatment of HHT, full updates on HHT research and clinical trials, as well as how individuals can get involved in raising awareness or organizing grassroots events.

Visit us at and see for yourself what's new. Don't forget to share our address with your doctors, family and friends so they can be current with the latest HHT research and treatments.

Keep checking back because there are lots of new features that will released in the coming weeks and throughout the year.


Learn About HHT Brochure

The HHT Foundation, along with our Medical Director, Scientific Research Director and several HHT specialists, re-wrote the comprehensive Learn About HHT brochure to incorporate diagnosis, screening and treatment protocols from the published HHT Clinical Guidelines, along with new information on iron deficiency and anemia, pregnancy, and the screening of children with HHT.

This new brochure is a wonderful resource to patients and physicians alike with inserts highlighting HHT Treatment Centers, Genetic Testing Labs, Facts at a Glance, and numerous resource organizations and websites.

Learn About HHT is the one document that every HHT family needs to have.

DOWNLOAD your copy of the BrochureFacts at a GlanceHHT Treatment Center/Genetic Labs and Resources.

The HHT Foundation is grateful for the generous support and partnership of Ambry Genetics. It is through their education grant that this revision of the Learn About HHT brochure was possible.


What's Next?

Over the course of the next year, you will see a significant change in the way the HHT Foundation communicates with its members, the medical community , and the general population at large. We are in the process of branding our activities, revamping our brochures with the latest medical information, conducting significant clinical trials, and participating in key research endeavors. All HHT Foundation programs will continue to be in alignment with our mission and strategic initiatives.

Stay abreast of everything that is going on in the HHT Community by subscribing to receive our website news posts and becoming a member of the HHT Foundation. You can do this on the footer of every page of the new website!