10th HHT Scientific Conference


You and your team are invited to attend  the 10th HHT Scientific Conference that will take place in Cork, Ireland on June 12-15, 2013.

Visit the Website - www.hht2013.com 

The conference goal is to provide a program with the highest quality scientific information through a wide selection of topics, speakers, and sessions devoted to the most recent advances in basic clinical and translational research, as well as therapeutics in HHT.

A website is available to facilitate registrations, hotel reservations, and abstract submissions, as well as to provide general information about the city, the venue, and other aspects of the conference. This site will be regularly updated with the latest news concerning the scientific program and general details about the conference.

Please note:  The abstract deadline is Feb. 18, 2013.  Also, registration for the conference using credit card payment will be available the week of Jan. 21, 2013.

Click here to submit an abstract.

You won't want to miss this event once you review the preliminary scientific program!  Your family / friends won't want you to go alone once they see the area photos and planned activities.

The 10th HHT International Scientific Conference is sponsored in part by the HHT Foundation International.

We look forward to seeing you in Cork this June!

HHT Awareness Touches the Medical Community

On June 23, 2012, the HHT Foundation announced the first-ever HHT Global Awareness Day. It is important that we collaborate with International Patient Groups, clinicians, scientists and patients every day of the year. This June, in celebration of June being HHT Awareness month, several activities have taken place. We have posted many patient activities. Now, we want to highlight a few events taking place in the medical and scientific community.


Related to the first HHT Global Awareness Day, an article was published by Paolo Pierucci et al. entitled "A long diagnostic delay in patients with Hereditary Haemorrhagic Telangiectasia: a questionnaire-based retrospective study". Orphanet Journal of Rare Diseases 2012 Jun 7;7(1):33 [Epub ahead of print], PMID: 226764972012. The provisional PDF is freely available on the website of Orphanet Journal of Rare Diseases. In this work, a retrospective study carried out in Italy showed that the time elapsing from the very first clinical manifestation to a definite HHT diagnosis spans almost three decades.

A similar study was conducted by Dr. Marie Faughnan et al. in Toronto, Canada. Their findings, which are in the process of being published, showed that the average diagnosis time from first visit to an ENT to a confirmed diagnosis is 13 years whereas the average is 14 years from first emergency room visit to HHT diagnosis.


We are very excited to announce that presentations related to HHT will be delivered at scientific and medical conferences around the world over the next twelve months. Here are just a few:

The International Society for the Study of Vascular Anomalies (June 16-19, 2012)
Workshop: Vascular Anomolies
Malmo, Sweden

European Association for the Study of Liver (June 22-23, 2012)
Vascular Liver Disease
Tallinn, Stonia

North American Vascular Biology Organization (October 14-18, 2012)
Workshop: Developmental Vascular Biology
Pacific Grove, California

Hemophilia and Thrombosis Research Society (May 2013)
HHT Invited Speaker

10th International HHT Scientific Conference (June 12-15, 2013)
Cork, Ireland
Website will be available shortly

HHT awareness has greatly increased in recent years and is one of the HHT Foundation's primary focuses for the next several years. Through partnerships with professional associations, HHT clinicians and researchers are able to increase medical and scientific awareness. We anticipate that this type of education will help decrease the time delay in HHT diagnosis which will ultimately impact HHT patient care and quality of life.