Tribute Page

I am the only one left

Libby Sharp
I have lost all of my family members to this disorder! I was not diagnosed with it until I had already lost my father, George. due to Gastrointestinal Tract hemorrhage, he was only 56. Then two weeks later I lost my brother, Curt due to brain hemorrhage, he was only 31. Less than five months later, my sister, Mitzi "my best friend" in the whole world had lung hemorrhage and was hospitalized. The hospital flew in a specialist from Michigan State University and he was the one who gave the rest of us the news. Mitzi died one week later at the age of 28. That left me, my sister Libby and my baby brother Ron. I lost my brother Ron on Mother's day, 2015 to kidney and brain hemorrhage, he was 48. Then on October 28, 2015, I lost my sister Libby to heart and lung hemorrhage, she was 54. I am the second born daughter and am now 58 years old. I miss them one and all! I contribute myself to being alive due to taking a holistic approach to this disorder. I take Vitamin K, every day. I do Vitamin B12 injections, 1cc every three days. I eat only organic food and drink only organic beverages. I also drink Beet Juice, which I make with organic GOLD beets, packed with Vitamin C (1,000 mg)and Vitamin E (1,000 mg), Calcium and Magnesium, thrown in the magic bullet. I also get massages on a regular basis to keep the blood flowing. I also DANCE until I drop on a regular basis to keep physically fit. I also listen and meditate to spiritually based music, soothing and relaxing and I avoid stress


Your First Name
Your Last Name
Write a Comment
Title for Comment
Thank you!
 
Your comment has been received and will be reviewed and posted by the CureHHT team. Thank you very much for your submission!

Please considering donating to CureHHT to help the HHT community, using the donate button above.



Guestbook

SE DE QUE HABLAS

maria ines schiappacasse
TAMBIÉN PERDÍ A MI PADRE Y HERMANO POR EL HHT. PADRE 51 AÑOS HERMANO 60. YO HOY 62, CONTROLO CADA 3 MESES MI HEMOGLOBINA Y EVITO CAER EN ANEMIAS, TOMO VITAMINA C. VIVO SIEMPRE EN PRESENTE, YA NO HAGO VIAJES EN AVION O SALIDAS QUE ME PRODUZCAN ESTRES O ANSIEDAD MI MUNDO SE HA REDUCIDO Y POCA VIDA SOCIAL,

Amy Roesner
Keep up the prayers! Thank you for sharing !!!

UPDATE

Rebecca Sharp
UPDATE: I am blessed with a "Service Animal" under the ADA that alerts to pre-seizure and bleeding episodes and I am still thankfully ALIVE! Thanks for your post Maria and I am sorry for your loss. I too avoid stress and stress related events. The City is now trying to put my service animal to sleep for a "alleged" animal bite, which she did not do. Going to Court to fight this which is causing an increase in seizures and bleeding episodes. I will post result of Court as soon as I hear. God Bless and Prayers to all.

When HHT touches someone close to you, it's natural to want to share their story with others.

HHT is a relentless disease that affects over one million people around the world. Many of those people are robbed of the opportunities that would allow them to lead a full and normal life. Cure HHT is the only organization in the world dedicated solely to research, education, and advocacy that will allow us to find a cure for this disease. You can make a tremendous impact on our mission and honor a loved one by creating a Memorial or Tribute.

Whether your family has managed HHT for generations or you are the first to be diagnosed, everyone has a story to tell. One of the dynamics that keeps our small community so strong is the constant opportunity HHT families have to relate to one another.

tribute-page-image