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She never lost her sense of humor

Helen Herrbach
As a child, I remember my mother, Helen Herrbach, standing at the sink for extended periods of time bleeding from the nose. Although her father died at age 35 when she was just a young girl, she remembered him packing his nose and then going off to work as a fireman on the railroad. He would come home from a long day of physical work and unpack his nose and bleed. As I entered my teenage years, I began to have nosebleeds and feared that I too had this dreaded “Osler” thing about which she spoke. I went into denial and tried to live my life with as much normalcy as possible. Watching my dear mother struggle with HHT over her life gave me great compassion for her, and even a greater connection to her beyond the obvious DNA. I hated that her life was limited in so many ways. I am grateful that my mother waged such a strong battle. Although she passed the HHT gene on to me, she also passed along her sense of humor and love for people for which I am extremely grateful.

Mom died of complications of HHT on November 18, 1991 at age 68.

I soon enter my 70th year of life. Since I must contend with many of the symptoms that plagued my grandfather and mother, I no longer live in denial. I am glad that today I do not face this disease alone but with so many dedicated doctors and researchers who labor for more effective treatments, and someday a cure. The future looks so much brighter for my children and grandchildren than it did for my dear mother.


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Guestbook

Ralph Herrbach
Ted, thanks for sharing this heartfelt message. I empathize with so much of what you have said.

Memory Eternal

Ann Carter
Your mother's memory will be eternal. Her battle is won! I look forward to that same battle being won myself.

Sweet Spirit

Jessica Kanaris
Helen,May your sweet spirit touch others as your journey continues?? Thoughts and prayers to all??????

I loved her!

Kathy Herrbach
My mother-in-law was one of a kind! Despite her struggles with HHT and other significant health issues, she was a woman full of passion, humor, song and a deep love for her family. We laughed and cried together for 27+ years, and I am so grateful for the privilege of knowing her. "Mom Herrbach" told stories that kept us in stitches! She was a woman who loved Christ, and I am thankful that we will be together again for all eternity! The HHT Community is amazing, and I am encouraged with the incredible progress made during these few past decades. I am hopeful that some day we will CureHHT!

Toni Anderson
I loved Mimi so much! She was never afraid to speak her mind or stand up for what she thought was right. I have so many great memories of spending time with her when I was a kid. I'll never forget my "sugary grandma." 🙂

Trisha Jones
My Mimi was am amazing women and I miss her dearly. I wish I would have gotten more time with her, but am thankful for the time we did share. She endured much throughout her life. I'm thankful for the HHT Community and all the advances that have been made to improve our lives.

When HHT touches someone close to you, it's natural to want to share their story with others.

HHT is a relentless disease that affects over one million people around the world. Many of those people are robbed of the opportunities that would allow them to lead a full and normal life. Cure HHT is the only organization in the world dedicated solely to research, education, and advocacy that will allow us to find a cure for this disease. You can make a tremendous impact on our mission and honor a loved one by creating a Memorial or Tribute.

Whether your family has managed HHT for generations or you are the first to be diagnosed, everyone has a story to tell. One of the dynamics that keeps our small community so strong is the constant opportunity HHT families have to relate to one another.

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