The Heath Family in Memory of Rob
I am writing as the daughter who genetically escaped HHT. I am thankful that I do not have to worry that every time I sneeze, laugh too hard, cry, or get upset that I will get a nosebleed - something my sister deals with daily. Or of a greater consequence, the complications my cousin has experienced starting at the age of 17 with her first brain aneurysm. The last 17 years of her life have seen multiple brain surgeries, internal bleeding, emergency splenectomy and complicated childbirth. I have had an uncle die from complications of spinal aneurysms and my grandmother died from esophageal bleeding -most likely AVM's.
But this is more about my dad. I certainly lost track of how many blood transfusions he received and iron infusions were almost an every other month necessity. Hospitalizations for nose bleeds that made him lose 6 units of blood, nasal cauterizations every 3 months, and a cerebral angiography. After all that, his life still ended too soon, but thankfully at peace that he did what he could. Our Poppy will be missed.
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