Tribute Page

Advances in the study of HHT provide hope.

Donald Scheele
My father, Donald Scheele, passed away in 2003 at the age of 77. Like so many others who suffered from HHT, he struggled for so many years with nose bleeds, transfusions, ablations and a host of other issues. Also, like so many others, his HHT was not properly diagnosed for many, many years. But my father rarely complained even while HHT was slowly wearing him down. The most difficult part was seeing how it was impacting my late mother who was his primary care giver. My mother made it a point to educate herself and the family about HHT. And thanks to the HHT Foundation and their newsletter, we learned quite a bit about HHT and the work that was being done to learn even more about the cause and the drive for a cure. My mother and father would be happy to know that there have been so many advances in the study of HHT and that so many more people can be properly diagnosed and treated. It is our hope that eventually a cure will be found so that others will not have to suffer the ill effects of HHT. And we thank the HHT foundation and all doctors and people involved in making that goal a reality.


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When HHT touches someone close to you, it's natural to want to share their story with others.

HHT is a relentless disease that affects over one million people around the world. Many of those people are robbed of the opportunities that would allow them to lead a full and normal life. Cure HHT is the only organization in the world dedicated solely to research, education, and advocacy that will allow us to find a cure for this disease. You can make a tremendous impact on our mission and honor a loved one by creating a Memorial or Tribute.

Whether your family has managed HHT for generations or you are the first to be diagnosed, everyone has a story to tell. One of the dynamics that keeps our small community so strong is the constant opportunity HHT families have to relate to one another.

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