A better future starts now
It is devastating to consider how life could have been for my family had we only been able to recognize the symptoms of HHT. I could have grown up with an older sister, could have known parents who were not stricken with grief. Dr. White emphasizes over and over the importance of family health history – it is one of the most crucial aspects of medical care. We cannot change what happened in the past, but we can all be a part of a better future for everyone affected by HHT. This is the mission of Cure HHT, and it is my own experience, and the knowledge that we can prevent so much needless loss, that has compelled me to commit myself to this organization.
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When HHT touches someone close to you, it's natural to want to share their story with others.
HHT is a relentless disease that affects over one million people around the world. Many of those people are robbed of the opportunities that would allow them to lead a full and normal life. Cure HHT is the only organization in the world dedicated solely to research, education, and advocacy that will allow us to find a cure for this disease. You can make a tremendous impact on our mission and honor a loved one by creating a Memorial or Tribute.
Whether your family has managed HHT for generations or you are the first to be diagnosed, everyone has a story to tell. One of the dynamics that keeps our small community so strong is the constant opportunity HHT families have to relate to one another.
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