Missing our kid
Now, his little sister is also diagnosed with HHT. We need to find a treatment for her but there is no enough technology in Cuba for HHT. We can´t afford to lose another kid.
We love and miss Jose, we´ll always do and we´ll do all we can for his little sister, our princess.
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When HHT touches someone close to you, it's natural to want to share their story with others.
HHT is a relentless disease that affects over one million people around the world. Many of those people are robbed of the opportunities that would allow them to lead a full and normal life. Cure HHT is the only organization in the world dedicated solely to research, education, and advocacy that will allow us to find a cure for this disease. You can make a tremendous impact on our mission and honor a loved one by creating a Memorial or Tribute.
Whether your family has managed HHT for generations or you are the first to be diagnosed, everyone has a story to tell. One of the dynamics that keeps our small community so strong is the constant opportunity HHT families have to relate to one another.
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