HHT In the News

2017

Chicago TribuneFrankfort Square family hopes to get back on the road despite health issues

2016

Fox 5Peach Bowl tailgate raising money for baby with rare disease

Evening Echo - Mercy Hospital 'Pioneering' Treatment of Rare Condition

Staten Island Live - Dan Siani's legacy grows with fight against HHT, disease that took his life

Marietta Times - 'Spokes"-man for stroke survivors

Catching Health - A history of bloody noses turned out to be a serious condition called HHT

The Scope - What is HHT and Might I have it?

KSL - Mother and infant son fight rare bleeding disorder

Get Healthy - Region family inspires hospital clinic for rare disease

medGadgetNavigating Through Brain’s Vasculature: A Trip to UCSF’s Neuro Cath Lab

FOX News Chicago - Chicago family on a mission to educate public about deadline disease HHT

2015

Fingal Independent - Working for a son's legacy

Kane County Chronicle - Face Time with Kelly Weber

Health Essentials - When a Bloody Nose is Cause for Concern

WNDU News - Researchers say 90 percent of patients with HHT don't know they have it

The Gazette - Iowa City woman works to raise awareness of rare bleeding disorder

Fox News Detroit - Michigan man running to cure HHT

New York Times - Think Like a Doctor: The Quarterback's Headache Solved!

New York Times - Think Like a Doctor: The Quarterback's Headache

Pittsburgh Tribune-ReviewPitt, UPMC facility cited as center of excellence in bid to cure HHT

ABC 27 News - Gamers Fight Through 30 Hour Gaming Marathon

Northern Virginia Daily - Family made special preparations for first grader

WHAG - Front Royal girl fights incurable genetic disease

Fox 10 News - Phoenix Children's Hospital diagnoses girl with HHT

The Glenwood Herald - Cure HHT Team Arkansas Walk Pictures

CBS Denver - Frequent nosebleed sufferers may have serious genetic condition

The New Indian Express - The Deal with Nosebleeds

Sioux Falls Argus Leader - Why I Ride: For hope

The Post Bulletin - Fundraising walk brings wider recognition to rare disorder

The News-Herald - Riverview family affected by genetic blood vessel disorder raises money for its cure

Medical ExpressCancer drug may reduce bleeding in patients with rare genetic disorder, HHT

The Herald-Sun - Runners gather to attack rare genetic disorder

KY3Rare Blood Disorder Affects an Ozarks Family

2014

The Northern Virginia Daily - Child's diagnosis spotlights under-diagnosed disease

Spenborough Guardian - Brave girl finds her voice at Stammer School

The Globe and Mail - We lost our baby in her third year - if she only knew how much she taught me 

The Yorkshire Post - Speaking up for ourselves and changing our lives for the better

Methow Valley News - Spokes fighting strokes

Fitnessworld.comStroke Survivor Raises Awareness for HHT Disease with Cross-Country Bike Ride

The Irish Examiner - Special Report: Raising awareness of HHT

The Fountain Hill Times - Dan Zimmerman to bike cross country for cause

2013

Daily Mercury - Dave's dead lucky to be back coaching

MyKawartha.com - Friday Focus: Coping with a genetic condition

The News Herald - Nosebleeds May Be the Sign of Blood Disorder

WBRZ TV Baton RougeHHT Blood Drives

FranklinHomepage.com - WillPower 5K Brings Out the Crowd

FranklinHomepage.com - Will Power: A Boys Fight to Live and 5K to Benefit Franklin Boy

AMERICA NOWNosebleeds Could be Blood Disorder

2012

KARK4 NewsMedical Breakthroughs: Treatment for Rare Genetic Disorder

Sunday Sun - Don't Miss Frequent Nosebleeds: It May be HHT

KPLC Channel 7 NewsLocal Family Raising Awareness About Blood Disorder

Niagara Gazette - Niagara Falls Man Battles Dangerous Bleeding Disorder

2011

The Salt Lake Tribune - Little-known but common genetic disease spurs Utahn to action

South Coast Today - Rare Blood Vessel Disorder Requires Specialty Care

Good Morning America'Mom Prom' High School Fashions Extravaganza Benefits Charity

Associated Press - Michigan Women Gather for Mom Prom

CBS News - Dressing Up for a Cause

UAMShealth.com - UAMS Diagnoses Woman's 16-year Illness 

2010

UCLA Today - Family with hereditary blood disorder gets help 

KABC Channel 7 NewsCatching HHT Early Could Save Your Life

Outlook Magazine - Blood vessel disorder requires a team-based approach

The Oakland Tribune - Drug offers hope to family with dangerous condition

ABC7 News Los Angeles - Cancer drug may help treat chronic nosebleeds

2008

The New York Times Health Guide  - Osler-Weber-Rendu Syndrome

Canada.com - The nosebleed disease

2006

ABC4 - Local clinic focuses on deadly disorder

CBS News Utah - Nosebleeds may be more serious than you think

ABC News Utah - Genetic blood condition may be silent killer