Physician Resources

 

Primary

Learn About HHT brochure_thumbnail - WebLearn More About HHT Brochure

HHT Treatment Centers (Complete Listing / Printable Summary)

Genetic Testing Labs (Complete Listing / Printable Summary)

HHT Facts at a Glance

HHT Resources

 HHT Clinical Guidelines

 HHT ICD-10 Insurance Code - I78.0   (ICD-9 code 448.0)

 

Secondary

Anatomy Gifts Registry - A whole body donation program of the Anatomic Gift Foundation, Inc.  The mission of AGR’s caring & compassionate non-profit program is to provide expertly prepared anatomical gifts to scientists, clinicians, & educators whose endeavors are deserving of the donation. These projects include discoveries that are not possible using animal or artificial models, such as advancements in surgical technique, medical devices, medications, & improvements in the diagnosis & treatment of many diseases & conditions. AGR can only accept donors who pass away within the contiguous United States (MN is the exception) but they work with researchers and educators both domestically and internationally.

Brain AVM Definition, Symptoms, Treatment

Clinical Description via Genetics Home Reference

Clinical and Scientific Review of HHT

Clot Connect Website - An education and outreach project of the University of North Carolina at Chapel Hill Blood Clot Outreach Program in the Hemophilia and Thrombosis Center. Clot Connect's mission is to increase knowledge of blood clots,  clotting disorders and anticoagulation by providing education and support resources for patients and health care professionals.

Epistaxis (Nosebleed) Severity Scoring Tool (ESS)

Read more about ESS in Dr. Hoag's abstract outlining the results of his study presented at the 8th HHT International Scientific Conference.

My Family Health Portrait – Provided by the Surgeon General, “My Family Health Portrait” is an internet-based tool that makes it easy for you to record your family health history.  The tool is easy to access on the web and simple to fill out.  It assembles your information and makes a “pedigree” family tree that you can download.  It is private—it does not keep your information.  It gives you a health history that you can share with family members or send to your health care practitioner.

National Coalition for Health Professional Education in Genetics - NCHPEG is a Maryland-based nonprofit organization whose mission is to promote genetics education for all health professionals. NCHPEG’s membership represents a broad range of professional societies, advocacy groups, corporate entities, and government agencies dedicated to the integration of genetically based health care into mainstream practice.

National Institute of Neurological Disorders and Stroke - NINDS is part of the National Institutes of Health (NIH); provides comprehensive information about arteriovenous malformations (AVMs).

PubMed – Comprises more than 19 million citations for bio-medical articles from MEDLINE and life science journals.  Citations may include links to full-text articles from PubMed Central or publisher websites.