US Treatment Centers

 

* NOSE Study Participating HHT Center

* Brain AVM Study Participating HHT Center

 

CLEVELAND CLINIC HHT CENTER

9500 Euclid Avenue
Cleveland, OH  44195

Contact:  Svetlana Banjac
Tel:  216-445-3636
Fax: 216-636-2054

Dr. Joseph Parambil, Director

Media Publications
Respiratory Exchange

FROEDTERT & MEDICAL COLLEGE OF WISCONSIN HHT CENTER

9200 West Wisconsin Avenue
Milwaukee, WI  53226

Froedtert HHT Website

Contact:  Jule Meddaugh
Tel:  414.805.3666  or  1.800.DOCTORS
Fax: 414-805-3905

Dr. Robert Krippendorf, Director

GEORGIA REGENTS UNIVERSITY HHT CENTER * *

(Formerly Medical College of Georgia)
Division of Pulmonary Medicine
1120 15th St. BBR 5513
Augusta, GA 30912-3135

GRU HHT Website

Contact: Janie Sims, RN
Tel: 706-721-0470
Fax: 706-721-2568

Dr. James Gossage, Director

JOHNS HOPKINS HHT CENTER * *

Radiology and Radiological Science
1800 Orleans St./ Bloomberg 3287
Baltimore, MD 21287-4010

Johns Hopkins HHT Website

Contact:  Courtney Myles-Ross
Tel: 410-550-LUNG (5864)

Dr. Christian Merlo, Co-Director
Dr. Sally Mitchell, Co-Director

MAYO CLINIC HHT CENTER *

Division of Pulmonary & Critical Care Medicine
200 First Street S.W.
Rochester, MN 55905

Mayo Clinic HHT Website

Contact: Abbie Gwilt
Tel: 507-266-0416
Fax: 507-266-4372

Dr. Michael Krowka, Director

OREGON HEALTH & SCIENCE UNIVERSITY HHT CENTER *

OHSU L-605
3181 S.W. Sam Jackson Park Rd.
Portland, OR 97239-3011

OHSU HHT Website

Contact: Dr. Mark Chesnutt, Director
Tel: 888-222-6478 ext 7660 or 503-494-7660
Fax: 503-494-7664

UNIVERSITY OF ARKANSAS for MEDICAL SCIENCES HHT CENTER

Division of Interventional Radiology
4301 W. Markham Street, #556
Little Rock, AR  72205-7199

UAMS HHT Website

Contact:   Paige Womble, RN
Tel:   501-686-6918
Fax: 501-686-8420

Dr. Mollie Meek, Director

Media Publications
UAMS Health

UNIVERSITY OF CALIFORNIA at LOS ANGELES HHT CENTER * *

UCLA Radiology Consultation Center
100 Medical Plaza, Suite 100
Los Angeles, CA  90095

UCLA HHT Website

Contact:  Gretel Arnold, HHT Center Administrative Assistant
Barbara Quinn, Nurse Practitioner / Coordinator
Tel:   310-481-7543

Dr. Justin McWilliams, Co-Director
Dr. Gary Duckwiler, Co-Director

Media Publications

UNIVERSITY OF CALIFORNIA at SAN DIEGO HHT CENTER

UCSD Medical Center
200 West Arbor Dr. 8756
San Diego, CA 92103

Contact: Julie Fisher, HHT Clinic Coordinator
Tel: 619-543-7965   619-543-5670

Dr. Thomas Kinney, Director

UNIVERSITY OF CALIFORNIA at SAN FRANCISCO HHT CENTER

Adult Clinic
185 Berry Street, Suite 180, Lobby 6
San Francisco, CA 94107-0946

Pediatric Clinic
UCSF Ron Conway Family Gateway Medial Building, 5th Floor, Reception area 5A
UCSF Medical Center at Mission Bay
1825 Fourth Street
San Francisco, CA 94158

UCSF HHT Website

Contact: Anjuli Figueira, Patient Care Coordinator
Tel: 415-353-8867
Fax: 415-353-3158

Dr. Miles Conrad, Co-Director
Dr. Steven Hetts, Co-Director

UNIVERSITY OF COLORADO HOSPITAL

12605 E. 16th Ave.
Aurora, CO 80045

UCH Website

Contact: Alex Armitage, Care Team Specialist
Tel: 720-848-6622

Dr. Brian Graham, Co-Director
Dr. Janette Durham, Co-Director

UNIVERSITY OF NORTH CAROLINA at CHAPEL HILL HHT CENTER

UNC at Chapel Hill, Department of Radiology
516 Old Infirmary CB# 7510
101 Manning Drive
Chapel Hill, NC  27599-7510

UNC HHT Website

Contact:   Karen Smith, RN
Tel:   919-966-2790

Dr. Raj Kasthuri, Director

UNIVERSITY OF PENNSYLVANIA HHT CENTER *

Division of Medical Genetic
3400 Spruce Street, 1115 Penn Tower
Philadelphia, PA 19104-4283

University of Pennsylvania HHT Website

Contact: Meredith Breen
Tel: 215-662-4740
Fax: 215-614-0298

Dr. Reed Pyeritz, Co-Director
Dr. Scott Trerotola, Co-Director

UPenn Area HOTELS

UNIVERSITY OF TEXAS - SOUTHWESTERN HHT CENTER

University of Texas Southwestern Medical School
5939 Harry Hines Boulevard
POB 2, Suite 630
Dallas, TX  75390-9198

UTSW HHT Website

Contact: Vicki Diaz
Tel: 214-645-2100

Dr. John Battaile, Director

UTSW Guest and Patient Services: 214-645-2393 to obtain hotel and amenity arrangements (i.e., wheelchairs, escorts, and other concierge services

UTSW Area HOTELS

UNIVERSITY OF UTAH MEDICAL CENTER HHT CENTER * *

30 North 1900 East
HHT Clinic/1A71
Salt Lake City, UT 84132

Utah HHT Website

Contact:  Amber Petrogeorge
Tel: 801-581-8188  (tollfree 866-292-4HHT)
Fax: 801-581-2414

Jamie McDonald, MS, CGC, Co-Director
Dr. Kevin Whitehead, Co-Director

WASHINGTON UNIVERSITY HHT CENTER * * 

660 South Euclid Avenue #8052
St. Louis, MO 63110-1093

WashU HHT Website

Contact: Dr. Murali Chakinala; Co-director  (Adults)
Tel: 877-888-5864 or 314-454-8917

Contact: Dr. Andy White; Co-director  (Pediatrics)
Tel: 314-454-2479

Contact: Dr. Jay Piccirillo (ENT)
Tel: 314-362-8641

WashU Area HOTELS

Media Publications

YALE UNIVERSITY HHT CENTER *

Department of Diagnostic Radiology
P.O. Box 208042
789 Howard Avenue, Room CB225
New Haven, CT 06520

Yale HHT Website

Contact: Kate Henderson, MS, CGC
Tel: 203-737-5395
Fax: 203-737-5394

Jeffrey Pollak, MD; Medical Director
Katharine Henderson, MS, CGC; Co-Director
Robert I. White, Jr., MD; Medical Director Emeritus