Cure HHT currently partners with over 25 HHT Treatment Centers of Excellence (COE) in North America. Although Cure HHT and the Cure HHT COE are completely separate entities, we have established a collaborative relationship that encourages advancements in the diagnosis, treatment and management of HHT that benefits all individuals affected by this disorder. COE certified after January 2017 have been certified by Cure HHT to meet the 2017 Criteria for a North American Cure HHT Center of Excellence. COE certified before January 2017 have been certified by Cure HHT to meet the 2008 Criteria for a North American Cure HHT Center of Excellence and will undergo recertification between 2018 and 2022.
UNITED STATES
Arkansas
UNIVERSITY OF ARKANSAS for MEDICAL SCIENCES HHT CENTER (2012)
Division of Interventional Radiology
4301 W. Markham Street, #556
Little Rock, AR 72205-7199
Contact: Lindsey Wyerick, RN
Tel: 501-686-6918
Dr. Mollie Meek, Director
Media Publications
UAMS Health
California
UNIVERSITY OF CALIFORNIA at LOS ANGELES HHT CENTER (2010)
UCLA Radiology Consultation Center
100 Medical Plaza, Suite 100
Los Angeles, CA 90095
Contact: HHT Center Administrator / Samantha Tangchaiburana, Nurse Practitioner
Tel: 310-481-7545
Dr. Justin McWilliams, Co-Director
Dr. Gary Duckwiler, Co-Director
UNIVERSITY OF CALIFORNIA at SAN DIEGO HHT CENTER (2008)
UCSD Medical Center
200 West Arbor Dr. 8756
San Diego, CA 92103
Contact: Julie Fisher, HHT Clinic Coordinator
Tel: 619-471-0320
Dr. Thomas Kinney, Director
UNIVERSITY OF CALIFORNIA at SAN FRANCISCO HHT CENTER (2014)
Adult Clinic
185 Berry Street, Suite 180, Lobby 6
San Francisco, CA 94107-0946
Pediatric Clinic
UCSF Ron Conway Family Gateway Medial Building, 5th Floor, Reception area 5A
UCSF Medical Center at Mission Bay
1825 Fourth Street
San Francisco, CA 94158
Contact: Anjuli Figueira, Patient Care Coordinator
Tel: 415-353-8867
Fax: 415-353-4503
Dr. Miles Conrad, Co-Director
Dr. Steven Hetts, Co-Director
Colorado
UNIVERSITY OF COLORADO HOSPITAL (2013)
12605 E. 16th Ave.
Aurora, CO 80045
Contact: HHT Patient Access Representative
Tel: 720-848-5182
Dr. Brian Graham, Co-Director
Dr. Paul Rochon, Co-Director
Media Publications
Connecticut
YALE UNIVERSITY HHT CENTER (2008)
Department of Diagnostic Radiology
P.O. Box 208042
789 Howard Avenue, Room CB225
New Haven, CT 06520
Contact: Kate Henderson, MS, CGC
Tel: 203-737-1427
Fax: 203-737-1077
Jeffrey Pollak, MD; Medical Director
Katharine Henderson, MS, CGC; Co-Director
Robert I. White, Jr., MD; Medical Director Emeritus
Georgia
AUGUSTA UNIVERSITY HHT CENTER (2008)
(Formerly Georgia Regents University)
Division of Pulmonary Medicine
1120 15th St. BBR 5513
Augusta, GA 30912-3135
Contact: Janie Sims, RN
Tel: 706-721-0470
Fax: 706-446-2815
Dr. James Gossage, Director
Illinois
UNIVERSITY OF CHICAGO MEDICAL CENTER HHT CENTER (2015)
5841 S. Maryland Avenue, J325
Chicago, IL 60637
New Patient Referrals: 773-702-2123
Emergency Referrals: 855-834-4782
Clinic Coordinator: Kristina Piedad, RN, BSN 773-834-5210
Dr. Issam Awad, Director (Adult patients)
Dr. Seon-Kyu Lee, Co-Director
Dr. Umesh Dyamenahalli, Associate Medical Director (Pediatric patients)
Media Publications
Maryland
JOHNS HOPKINS HHT CENTER (2009)
Radiology and Radiological Science
1800 Orleans St./ Bloomberg 3287
Baltimore, MD 21287-4010
Contact: Courtney Myles-Ross
Tel: 410-550-LUNG (5864)
Dr. Christian Merlo, Co-Director
Dr. Sally Mitchell, Co-Director
Massachusetts
MASSACHUSETTS GENERAL HOSPITAL (MGH) HHT CENTER (2016)
HHT center includes affiliations with Massachusetts General Hospital, MassGeneral Hospital for Children, and Massachusetts Eye & Ear Infirmary
Pulmonary Hypertension Clinic
55 Fruit Street, Bulfinch 148
Boston, MA 02114
Contact: Pulmonary Hypertension Clinic
Tel: 617-724-3705
Dr. Josanna Rodriguez-Lopez, Co-Director
Dr. Ray Liu, Co-Director
Minnesota
MAYO CLINIC HHT CENTER (2014)
Division of Pulmonary & Critical Care Medicine
200 1st Street S.W.
Rochester, MN 55905
Contact: Appointment Office
Tel: 507-284-9711
Dr. Vivek Iyer, Director
Missouri
WASHINGTON UNIVERSITY HHT CENTER (2008)
660 South Euclid Avenue #8052
St. Louis, MO 63110-1093
Contact: Dr. Murali Chakinala; Co-director (Adults)
Tel: 877-888-5864 or 314-454-8917
Contact: Dr. Andy White; Co-director (Pediatrics)
Tel: 314-454-2479
Contact: Dr. Jay Piccirillo (ENT)
Tel: 314-362-8641
Media Publications
- Outlook - HHTeam
- Pediatric Brochure
- Video News
New York
NEWYORK-PRESBYTERIAN / COLUMBIA UNIVERSITY IRVING MEDICAL CENTER HHT CENTER (2016)
177 Fort Washington Avenue
MBH 4-100
New York, NY 10032
Contact: Helen Pena-Chacon (adults)
Tel: 212-305-7094
Contact: Dr. Emilio Arteaga-Solis (pediatrics)
Tel: 212-305-5122
Dr. Sophie Chheang, Co-Director
Dr. David Sperling, Co-Director
North Carolina
UNIVERSITY OF NORTH CAROLINA at CHAPEL HILL HHT CENTER (2011)
UNC at Chapel Hill
Department of Hematology
6340 Quadrangle Drive
Suite 50
Chapel Hill, NC 27517
Contact: Karen Smith, RN
Tel: 919-966-2790
Dr. Raj Kasthuri, Director
Ohio
CINCINNATI HHT CENTER (2016)
3333 Burnet Ave.
Cincinnati, OH 44195
Contact: Melissa Morris, Patient Coordinator
Tel: 513-636-2084
Dr. Adrienne Hammill, Director
Dr. Manish Patel, Associate Director
CLEVELAND CLINIC HHT CENTER (2013)
9500 Euclid Avenue
Cleveland, OH 44195
Contact: Kasi Timmerman
Tel: 216-445-3636
Fax: 216-636-2054
Dr. Joseph Parambil, Director
Media Publications
Respiratory Exchange
Oregon
OREGON HEALTH & SCIENCE UNIVERSITY HHT CENTER (2008)
OHSU L-605
3181 S.W. Sam Jackson Park Rd.
Portland, OR 97239-3011
Contact: Tami Karjalainen
Tel: 503-418-6725
Dr. Mark Chesnutt, Director
Pennsylvania
UNIVERSITY OF PENNSYLVANIA HHT CENTER (2008)
Division of Medical Genetic
3400 Spruce Street, 1115 Penn Tower
Philadelphia, PA 19104-4283
Contact: Kara Walsh
Tel: 215-662-4740
Fax: 215-614-0298
Dr. Reed Pyeritz, Co-Director
Dr. Scott Trerotola, Co-Director
UPMC and THE UNIVERSITY OF PITTSBURGH HHT CENTER (2015)
UPMC Presbyterian - Shadyside
200 Lothrop Street
Pittsburgh, PA 15213
Contact: General Call Center (request a referral to the UPMC HHT Center)
Tel: 412-648-6161
Dr. Christopher Faber, Director
Texas
UNIVERSITY OF TEXAS - SOUTHWESTERN HHT CENTER (2014)
University of Texas Southwestern Medical School
5939 Harry Hines Boulevard
POB 2, Suite 630
Dallas, TX 75390-9198
Contact: Randy Levins
Tel: 214-645-2100
Dr. John Battaile, Director
UTSW Guest and Patient Services: 214-645-2393 to obtain hotel and amenity arrangements (i.e., wheelchairs, escorts, and other concierge services
Utah
UNIVERSITY OF UTAH MEDICAL CENTER HHT CENTER (2008)
30 North 1900 East
Room 4A100
Salt Lake City, UT 84132
Contact: Cherisa Chappell, HHT Patient Care Coordinator
Tel: 801-581-8188
Fax: 801-587-5872
Email: UoU_HHT@hsc.utah.edu
Jamie McDonald, MS, LGC, Co-Director
Dr. Kevin Whitehead, Co-Director
Wisconsin
FROEDTERT & MEDICAL COLLEGE OF WISCONSIN HHT CENTER (2012)
9200 West Wisconsin Avenue
Milwaukee, WI 53226
Contact: Jule Meddaugh
Tel: 414.805.3666 or 1.800.DOCTORS
Fax: 414-805-3905
Dr. Robert Krippendorf, Director
CANADA
TORONTO HHT CENTRE (2008)
St. Michael's Hospital
30 Bond St., Room 6049
Toronto, ON M5B 1W8
CANADA
University of Toronto HHT Website
Adult HHT & Pulmonary AVM Center
Contact: Rose Pantalone for Dr. Marie Faughnan, Director
Tel: 416-864-6060 ext. 2407
Pediatric HHT Clinic
Director: Dr. Felix Ratjen, Pediatric Respirologist
Hospital for Sick Children
Tel: 416-813-5837 (contact: Susan Carpenter)
HHT Genetics Team
The Hospital for Sick Children
Division of Clinical & Metabollic Genetics
555 University Ave.
Toronto, ON M5G1X8
Canada
Contact: Ms. Regan Klatt, MS, CGC; Vice-Director
Tel: 416-813-6389
Fax: 416-813-5345
Brain AVM Clinic
University Health Network
Dr. Karel terBrugge, Interventional Neuroradiologist
Tel: 416-603-5266
Brain AVM Study Clinic Website
EDMONTON HHT CENTRE (2008)
University of Alberta
3-105C Clinical Sciences Building
Edmonton, AB T6G 2G3
CANADA
Contact
Dr. Dilini Vethanayagam, Co-Director
Dr. Richard Owen, Co-Director
Tel: 780-492-5879
Fax: 780-492-6739
MONTREAL HHT CENTRE (2008)
CHUM, Hotel Dieu
3840 St - Urbain
Montreal, QC H2W 1T8
CANADA
Contact: Anouk Gackowski for Dr. Andreanne Gauthier, Director
Tel: 514-890-8000 local 15672
Fax: 514-412-7123
WINNIPEG HHT CENTRE (2016)
Grace Hospital AMC
300 Booth Drive
Winnipeg, MB R3J 3M7
CANADA
Contact: Dr. Els Maria De Gussem, Director
Tel: 204-837-0790
Fax: 204-837-0791
HHT Global Awareness Day
HHT Research Update
Get Your Candle for Awareness Month
Take Action: Protect Your Insurance
Hetts Receives Young Clinician Award
Cure HHT Needs You!
#HHTFamCon 2016
Scientific Conference Registration
Cure HHT Launches 25th Center in 25 Years
NOSE Study Results Are In!
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