US Treatment Centers

 

* Brain AVM Study Participating HHT Center

 

Arkansas

UNIVERSITY OF ARKANSAS for MEDICAL SCIENCES HHT CENTER

Division of Interventional Radiology
4301 W. Markham Street, #556
Little Rock, AR  72205-7199

UAMS HHT Website

Contact:   Paige Womble, RN
Tel:   501-686-6918
Fax: 501-686-8420

Dr. Mollie Meek, Director

Media Publications
UAMS Health

California

UNIVERSITY OF CALIFORNIA at LOS ANGELES HHT CENTER *

UCLA Radiology Consultation Center
100 Medical Plaza, Suite 100
Los Angeles, CA  90095

UCLA HHT Website

Contact:  HHT Center Administrator / Barbara Quinn, Nurse Practitioner
Tel:   310-481-7545

Dr. Justin McWilliams, Co-Director
Dr. Gary Duckwiler, Co-Director

UNIVERSITY OF CALIFORNIA at SAN DIEGO HHT CENTER

UCSD Medical Center
200 West Arbor Dr. 8756
San Diego, CA 92103

Contact: Julie Fisher, HHT Clinic Coordinator
Tel: 619-543-7965   619-543-5670

Dr. Thomas Kinney, Director

UNIVERSITY OF CALIFORNIA at SAN FRANCISCO HHT CENTER *

Adult Clinic
185 Berry Street, Suite 180, Lobby 6
San Francisco, CA 94107-0946

Pediatric Clinic
UCSF Ron Conway Family Gateway Medial Building, 5th Floor, Reception area 5A
UCSF Medical Center at Mission Bay
1825 Fourth Street
San Francisco, CA 94158

UCSF HHT Website

Contact: Anjuli Figueira, Patient Care Coordinator
Tel: 415-353-8867
Fax: 415-353-3158

Dr. Miles Conrad, Co-Director
Dr. Steven Hetts, Co-Director

Colorado

UNIVERSITY OF COLORADO HOSPITAL

12605 E. 16th Ave.
Aurora, CO 80045

UCH Website

Contact: HHT Patient Access Represenative
Tel: 720-848-5182

Dr. Brian Graham, Co-Director
Dr. Paul Rochon, Co-Director

Media Publications

Connecticut

YALE UNIVERSITY HHT CENTER

Department of Diagnostic Radiology
P.O. Box 208042
789 Howard Avenue, Room CB225
New Haven, CT 06520

Yale HHT Website

Contact: Kate Henderson, MS, CGC
Tel: 203-737-5395
Fax: 203-737-5394

Jeffrey Pollak, MD; Medical Director
Katharine Henderson, MS, CGC; Co-Director
Robert I. White, Jr., MD; Medical Director Emeritus

Georgia

GEORGIA REGENTS UNIVERSITY HHT CENTER *

(Formerly Medical College of Georgia)
Division of Pulmonary Medicine
1120 15th St. BBR 5513
Augusta, GA 30912-3135

GRU HHT Website

Contact: Janie Sims, RN
Tel: 706-721-0470
Fax: 706-721-2568

Dr. James Gossage, Director

Illinois

University of Chicago Medicine HHT Center

5841 S. Maryland Avenue, J325
Chicago, IL 60637

Website

Contact: Shannon Love, RN, BSN
Appts: 773- 702-4452
Fax: 773-702-3518

Dr. Issam Awad, Director

Media Publications

Maryland

JOHNS HOPKINS HHT CENTER 

Radiology and Radiological Science
1800 Orleans St./ Bloomberg 3287
Baltimore, MD 21287-4010

Johns Hopkins HHT Website

Contact:  Courtney Myles-Ross
Tel: 410-550-LUNG (5864)

Dr. Christian Merlo, Co-Director
Dr. Sally Mitchell, Co-Director

Massachusetts 

MASSACHUSETTS GENERAL HOSPITAL  (MGH) 

HHT center includes affiliations with Massachusetts General Hospital, MassGeneral Hospital for Children, and Massachusetts Eye & Ear Infirmary

Pulmonary Hypertension Clinic
55 Fruit Street, Bulfinch 148
Boston, MA  02114

Mass General HHT Website

Contact:  Pulmonary Hypertension Clinic
Tel: 617-724-3705

Dr. Josanna Rodriguez-Lopez, Co-Director
Dr. Ray Liu, Co-Director

Minnesota

MAYO CLINIC HHT CENTER *

Division of Pulmonary & Critical Care Medicine
200 First Street S.W.
Rochester, MN 55905

Mayo Clinic HHT Website

Contact: Keri Jacobson, Medical Secretary
Tel: 507-284-2158
Fax: 507-266-4372

Dr. Michael Krowka, Director

Missouri

WASHINGTON UNIVERSITY HHT CENTER *

660 South Euclid Avenue #8052
St. Louis, MO 63110-1093

Contact: Dr. Murali Chakinala; Co-director  (Adults)
Tel: 877-888-5864 or 314-454-8917

Contact: Dr. Andy White; Co-director  (Pediatrics)
Tel: 314-454-2479

Contact: Dr. Jay Piccirillo (ENT)
Tel: 314-362-8641

WashU Area HOTELS

Media Publications

North Carolina

UNIVERSITY OF NORTH CAROLINA at CHAPEL HILL HHT CENTER *

UNC at Chapel Hill
Department of Hematology
6340 Quadrangle Drive
Suite 50
Chapel Hill, NC  27517

UNC HHT Website

Contact:   Karen Smith, RN
Tel:   919-966-2790

Dr. Raj Kasthuri, Director

Ohio

CLEVELAND CLINIC HHT CENTER

9500 Euclid Avenue
Cleveland, OH  44195

Contact:  Kasi Timmerman
Tel:  216-445-3636
Fax: 216-636-2054

Dr. Joseph Parambil, Director

Media Publications
Respiratory Exchange

Oregon

OREGON HEALTH & SCIENCE UNIVERSITY HHT CENTER

OHSU L-605
3181 S.W. Sam Jackson Park Rd.
Portland, OR 97239-3011

OHSU HHT Website

Contact: Tami Karjalainene
Tel: 503-494-7660 (Option 1 for HHT Clinic)

Dr. Mark Chesnutt, Director

Pennsylvania

UNIVERSITY OF PENNSYLVANIA HHT CENTER

Division of Medical Genetic
3400 Spruce Street, 1115 Penn Tower
Philadelphia, PA 19104-4283

Contact: Meredith Breen
Tel: 215-662-4740
Fax: 215-614-0298

Dr. Reed Pyeritz, Co-Director
Dr. Scott Trerotola, Co-Director

UPenn Area HOTELS

UPMC and THE UNIVERSITY OF PITTSBURGH HHT CENTER

UPMC Presbyterian - Shadyside
200 Lothrop Street
Pittsburgh, PA  15213

Contact:  General Call Center (request a referral to the UPMC HHT Center)
Tel: 412-648-6161

Dr. Christopher Faber, Director

Patient Story Video

Texas

UNIVERSITY OF TEXAS - SOUTHWESTERN HHT CENTER

University of Texas Southwestern Medical School
5939 Harry Hines Boulevard
POB 2, Suite 630
Dallas, TX  75390-9198

UTSW HHT Website

Contact: Vicki Diaz
Tel: 214-645-2100

Dr. John Battaile, Director

UTSW Guest and Patient Services: 214-645-2393 to obtain hotel and amenity arrangements (i.e., wheelchairs, escorts, and other concierge services

UTSW Area HOTELS

Utah

UNIVERSITY OF UTAH MEDICAL CENTER HHT CENTER *

30 North 1900 East
HHT Clinic/1A71
Salt Lake City, UT 84132

Utah HHT Website

Contact:  HHT Care Coordinator
Tel: 801-581-8188
Fax: 801-581-2414
Email: [email protected]

Jamie McDonald, MS, CGC, Co-Director
Dr. Kevin Whitehead, Co-Director

University of Utah Lodging

Utah Media Publication

Wisconsin

FROEDTERT & MEDICAL COLLEGE OF WISCONSIN HHT CENTER

9200 West Wisconsin Avenue
Milwaukee, WI  53226

Froedtert HHT Website

Contact:  Jule Meddaugh
Tel:  414.805.3666  or  1.800.DOCTORS
Fax: 414-805-3905

Dr. Robert Krippendorf, Director