My HHT Possibility Donate to HHT
  • Jody M
    My Cure HHT possibility is I want to see a real alternative to laser surgeries to stop nosebleeds.
  • Katie K
    My Cure HHT possibility is that one day, in my son's lifetime, there will be a cure for HHT thru gene therapy. I would also like to see better treatments for nosebleeds.
  • Cassie H
    My Cure HHT possibility is to find safe and effective drugs to treat AVM's in all parts of the body.
  • Mark K
    My Cure HHT possibility is more research in both the genetic and clinical arenas to enhance the treatment of this disease and improve the lives of patients with HHT. I have personally benefitted from some of this research and would like to see others benefit as well.
  • Marianne C
    My Cure HHT possibility is translating the information from research into clinical therapies within the very near future.
  • Donna C
    My Cure HHT possibility is to eradicate it totally. Any way to isolate sperm or eggs that carry HHT and those that don't. Then artifical or in vitro fertirlization?
  • Lindsey C
    My Cure HHT possibility is for people to understand that through routine screening and medical care it is possible to live a regular life and battle HHT. Don't let HHT define you, we define it!
  • Denise R
    My Cure HHT possibility is a cure for nosebleeds.
  • Robert S
    My Cure HHT possibility is to participate in running events to contribute donations towards finding a Cure. I would love to see if FitBit company could get involved as well. I'm located in the New York area if interested please contact me.
  • Nancy K
    My Cure HHT possibility is better treatment for nosebleeds and alternatives to oral high-dose iron therapy.
  • Keriann P
    My Cure HHT possibility is working together to share knowledge. Without Cure HHT I wouldn't have known about the research available for me and my infant son, who will be living with HHT in a new generation. I'm excited to see what his generation can accomplish with progress to finding a cure.
  • Ralf S
    My Cure HHT possibility is to further try Tacrolimus for HHT. It has done a very good job, so far for me by keeping my nosebleeds near zero for 6 months, now. Looking forward to more patients getting this opportunity fo taking tacrolimus at low doses for HHT.
  • Marilyn O
    My Cure HHT possibility is that the Medical Practitioners in Australia know about HHT and understand what help is appropriate when HHT sufferers have an episode and need medical help.
  • Curtis L
    My Cure HHT possibility is to have access to better health care]and medical procedures. I am currently on a long waiting list for argon laser surgery to mitigate blood loss.
  • Terri M
    My Cure HHT possibility is first and foremost is to find a cure.
  • Barbara C
    My Cure HHT possibility is to have a center of excellence in my state I would also like to see that every doctor be aware and knowledgeable about HHT as a real disorder not something they "heard mentioned briefly" in Med school.
  • Deborah D
    My Cure HHT possibility is to have a doctor in every major city who is a knowledgeable resource for consultation and testing...a first treatment option.
  • Grady B
    My Cure HHT possibility is advancement in treatment of nose bleeds. My mom has a continual problem with nose bleeds, much worse than mine.
  • Richard
    My Cure HHT possibility is to see better blood filtering nation wide. This will allow HHT patients to have access to blood longer. To save $$ the blood networks are only filtering it once for Leukocytes. This allows a lot of allergy information to the recipient of the blood. Eventually this will cause the recipient of frequent transfusions to require rare blood. This is where I find myself now....
  • Barbara B
    My Cure HHT possibility is for my grandson and testing for other members of the family. They are still paying bills from the AVM intervention in his brain. They cant afford for the others to be tested because it costs so much.
  • Stefanie P
    My Cure HHT possibility is to help to raise awareness in Australia to assist in an eventual cure if not for me but for my son.
  • Girard G
    My Cure HHT possibility is to get better treatment for the nosebleeds.
  • John B
    My Cure HHT possibility is to find a genetic altering cure so my 5 children to whom I passed this on can have more hope
  • Sabine M
    My Cure HHT possibility is My goal is: - collect studies to stay informed and to give to doctors and insurances - To publish more in newspaper for the public and in specialized journals for doctors, even in Europe (if possible) - more webinars with specialists - To publish what it means to live with HHT (psychological, social....) I personally get about 90 ECs per year and I have to stay often...
  • Patricia R
    My Cure HHT possibility is that I can take part in the Webinars. Membership needs to be more affordable. I cannot afford the annual membership fee as I am disabled and on a limited income. HHT is the cause of my Pulmonary Hypertension and I have a long list of diseases and syndromes. My expenses are astronomical in Doctor visits and prescriptions. I would love to take advantage...
  • Geraldine M
    My Cure HHT possibility is much much much more effective treatment for nosebleeds. My 3 kids are watching their future unfold in their father's illness. I'd like them to see hope.
  • LeannD
    My Cure HHT possibility is to find many more DNA strands that define HHT so my future grandchildren will know right away. I am one of the few that they could not find the strand. Also to have a Center of Excellence in every state.
  • Ashley H
    My Cure HHT possibility is to not have to travel out of state to receive quality treatment.
  • Deb W
    My Cure HHT possibility is to have all genes identified for families to know for sure.
  • Diane B
    My Cure HHT possibility is that gene therapy becomes a viable reality.
  • William Moran
    My Cure HHT possibility is to have more doctors aware of treatments and more doctors willing to accept patients with HHT. Many patients don't live near treatment centers or near doctors knowledgable in the treatments.
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