Manage HHT

 

HHT is a multi-system blood vessel disorder that can affect various organs in the body. The HHT Clinical Guidelines were published in the Journal of Medical Genetics - this is the most comprehensive document concerning standardized care for HHT patients. Many of these findings, along with areas of special interest, are summarized in the following documents:

Learn About HHT brochure_thumbnail - WebLearn More About HHT Brochure

HHT Treatment Centers (Complete Listing / Printable Summary)

Genetic Testing Labs (Complete Listing / Printable Summary)

HHT Facts at a Glance

HHT Resources

The HHT Foundation International, Inc. recommends that HHT patients receive evaluation and treatment at an HHT Center of Excellence. It is our experience that if HHT patients do not receive care from recognized experts in this rare disorder, manifestations of HHT are often missed or mismanaged. In general, an evaluation at an HHT Center of Excellence is recommended every 5 years, or when treatment is indicated or under consideration.

For many reasons, it is important that the HHT Diagnosis is part of a patient's medical history - make sure that ICD10 Code I78.0 or ICD9 Code 448.0 is utilized for all clinically or genetically diagnosed patients.