As part of the new Cure HHT brand, we have created NEW resource materials to be shared with you local physicians and family members. We encourage you to share our website, www.curehht.org, and these resources which can be downloaded from the Resource Section.
Some day soon, we will find a cure for HHT. Until then, the disease is one that we must learn to manage throughout our lives. It is essential that you have all of the resources necessary to take control of your life. Knowledge is power.
12 fact sheets are now available and more are on their way....
- Advice for People Newly Diagnosed with HHT
- Know the Signs & Symptoms
- Talking To Your Physician About HHT
- My Child Has HHT: Screening Guidelines
- I Have HHT: For Kids
- Coping with HHT: For Teens
- Living with HHT
- Family Ties: Genetic Testing
- HHT & Stroke
- Aging Patients with HHT
- HHT & Depression
- My Partner Has HHT