What the HHT?
A blog for the HHT community
Archive for January 2017
Asking for Help Can Save Your Life
I had just gotten back from my best friends house. My eyes were red and puffy, and I tried to hide them behind my hand as I ran into my house and down the stairs. The questions to follow if my parents had seen me upset would only make me feel worse. At times like these,…
Read MoreA New Year with Hope and Perseverance
Happy New Year to the Cure HHT family, friends and supporters! I’m going to drop a quick note as I’m preparing to depart and visit my new granddaughter and first grandchild in Alabama. I’m so blessed to be strong enough to travel. My daughter’s pregnancy and delivery was successful and there were no issues or…
Read MoreReal Talk From the Heart
The past few months have been such a challenge and very difficult. At last check, my blood levels were an 8.7 and dropping. My iron saturation is below the lowest and I’m definitely not creating any hemoglobin (blood). I’m well aware that they have most likely dropped even more, and I need to verify this,…
Read MoreFrankfort Square family hopes to get back on the road despite health issues
Chicago Tribune | 2017
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