Hello Cure HHT community. I’m Janice Lee Jones, originally from San Jose, CA. I’m a 46-year-old woman who has been dealing with HHT unknowingly for 34 years; and knowingly for the past 12 years. My faith in Christ is what has kept me, and I excitedly look forward to a cure for HHT and the…

2016 is the year my largest PAVM, first detected and treated in 1993, decided to fully challenge my life. Over the previous four years, my HHT interventional radiologist had made a valiant effort to close this PAVM, but this singular cluster of mixed up pathways now threatened my existence. At 5 p.m. on a Friday…