Pumping Iron in HHT

Presenters

Totonto Team - Ronalee Rbert Zhenxiu Cheng, Rose Pantalone Marie FaughnanThe webinar on Pumping Iron in HHT is being presented by 4 members of the multi-disciplinary team at St. Michael's Hospital, HHT Center in Toronto, Canada.

The team presenting tonight consists of Dr. Faughnan who has been working with HHT patients for almost 20 years and is the director of the HHT program.  Ronalee Roberts, team dietician; Rose Pantalone, HHT clinic nurse; and Zhenxiu Cheng, a nurse in the Medical Day Care where patients receive their iron.

Webinar

Join this team of experts from the HHT Center of Excellence at the University of Toronto/St. Michael's Hospital for a discussion of iron deficiency anemia in HHT.  Learn how to “pump iron” with the right diet, medications and treatments.

Webinar Highlights

  • Causes of anemia
  • Ways to increase iron supply
  • How to get the most out of the iron in your diet
  • Iron treatments and side effects
  • What are the risks/benefits of iron supplements and iron infusion
  • Handout - Pumping Iron in HHT

ACT NOW

  • SHARE this information and webinar link with your family members affected by HHT

Cure HHT

Cure HHT is the cornerstone of the HHT community, advancing one common hope - to give those affected by HHT a chance for a normal life. This webinar series is just one of many ways we accomplish this mission. Beginning in May, Cure HHT members will have access to unlimited webinars, discounted conference registration and much more. Please consider joining or renewing your Cure HHT membership so that you can participate in all activities within the HHT community.

 community

Cure HHT Launches 23rd Center

mass gen23rd HHT Center of Excellence in North America

Massachusetts General Hospital

Boston, MA

 

 

mas gen notesCure HHT has brought Massachusetts General Hospital (MGH) together with Mass General Hospital for Children and Massachusetts Eye & Ear Infirmary to form the only facility in the state specializing in the diagnosis, evaluation and treatment of HHT.

This collaboration allows them to provide specialized care across a patient’s lifespan. The MGH HHT Center offers compassionate, family-centered multidisciplinary care, led by Dr. Josanna Rodriguez-Lopez, coordinating care for adult and pediatric patients. She is joined by an outstanding group of physicians, including Dr. Raymond Liu as the Associate Director, who share her dedication for the multidisciplinary treatment of this disease.

Rodriguez-Lopez, Josanna MGH

 

Dr. Rodriguez-Lopez has dedicated her career to treating patients with pulmonary vascular disease. As the Associate Director of the Pulmonary Hypertension and Thromboendarterectomy Program at MGH, she specializes in all aspects of pulmonary vascular disease, with a particular interest in pulmonary arteriovenous malformations. She has several years of experience managing HHT and is looking forward to growing the HHT program as well as developing a strong partnership with Cure HHT and the HHT community.

 

Specialties at MGH HHT Center  (*adult and pediatric services)

Cardiology*

Dermatology

Dentist/Oral Surgeon

Genetics/Counseling

Gastroenterology*

Hematology*

Interventional Radiology

Neuro-interventional Surgery

Neurology/Stroke

Neurosurgery*

OB/GYN

Otolaryngology (ENT)*

Primary Care (PCP)

Pulmonology*

Radiology

Surgery*

 

MGH_Mass General Childrens Hospital

MGH_Harvard Logo

MGH_Mass Eye and Ear

MGH_Hospital

 

 

 

Ask the Doctor: Jason Hamilton

Q: Can excessive treatment for nosebleeds permanently harm my nose?

Dr. Jason Hamilton, Director of Plastic and Reconstructive Surgery at Osborne Head and Neck Institute: It's possible to develop a septal perforation, which occurs when cartilage separating the two nostrils (known as the septum) develops a hole or fissure. This can cause a variety of symptoms, most notably nose bleeding. In HHT patients, septal perforation is usually attributed to nasal trauma from aggressive laser or electric coagulation sometimes used in treating epistaxis.

A septal perforation alters the anatomy of the nose, affecting its function. The normal humidity in the nose is decreased by constant airflow across the weak or torn edges of the perforation, causing the site of the perforation to dry out, leading to a crusted or scabbed area likely to bleed. When left untreated, it causes further deterioration of the condition.

The surgical procedure to repair a septal perforation should be performed soon after a diagnosis, and not as a last resort. The goal is to restore normal nasal anatomy and humidification and to reestablish the structural integrity of the nose – it is not a cure for HHT-related epistaxis.