HHT and PH – Connecting the Dots

Presenter

Dr. Chakinala is an Associate Professor in the Department of Internal Medicine and is Director of the Pulmonary Hypertension Care Center and Co-Director of the HHT Center at Washington University. He is board certified in Internal Medicine, Pulmonary Medicine, and Critical Care Medicine. Dr. Chakinala is a member of the Scientific Leadership Council of the Pulmonary Hypertension Association, chair-elect of the Pulmonary Hypertension Care Centers Oversight Committee, and member of the Cure HHT’s Global Research Medical Advisory Board.  His interests include clinical management and clinical research in the areas of pulmonary hypertension, pulmonary arterio-venous malformations, pulmonary thrombo-embolic diseases, and end-stage lung diseases.

Webinar

Join Dr. Murali Chakinala to learn about the dots connecting HHT and Pulmonary Hypertension. He discussed how HHT can cause PH, how the combinations of these diseases affect a patient and what treatment options are available.

Webinar Highlights

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Cure HHT

Cure HHT is the cornerstone of the HHT community, advancing one common hope - to give those affected by HHT a chance for a normal life. This webinar series is just one of many ways we accomplish this mission. If you found value in this information, please consider making a donation NOW to keep this initiative moving forward. It is through the generosity of our donors that we can continue to provide this valuable education to the HHT community.

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Ask The Doctor: Dr. Brian Graham

Q: What are the risks and precautions an HHT patient should be aware of when getting a tattoo?

Dr. Brian Graham, Co-Director of University of Colorado HHT Center: I have come to the consensus that it should generally be safe. I'd recommend you not have a tattoo applied to a visible telangiectasia, as that may bleed quite a bit. Be sure that the skin was carefully cleaned at the site, such as with rubbing alcohol, to avoid any infection, and probably avoid areas that are less sterile such as in the pelvis.

If you have known pulmonary arteriovenous malformations (PAVMs), consider being extra careful by taking a single dose of an antibiotic at the time of the procedure, to avoid any bacteria released from the skin passing through a lung AVM and going to the brain or other places in the body and causing an infection.

As a more general precaution, make sure they use clean needles (to avoid getting infected with HIV or hepatitis) and stick to reputable places, rather than doing it “homemade."

Let’s Get Personal – HHT in Women

Presenter

Dr. Els Maria de Gussem is an HHT clinician in the Respirology Division at Grace Hospital, University of Manitoba in Canada. She has dedicated her career to developing an expertise in HHT, both in clinical care and research. Dr. de Gussem has performed a study on the influence of pregnancy in HHT along with studies on quality of life and life expectancy in HHT. She received the Robert I. White Young Clinician Award in 2009 for her clinical compassion and dedication to improving HHT care.

Webinar

Join HHT Physician Dr. de Gussem for an in-depth look at the effects of HHT on the changing female body. She will discuss the impact of birth control, pregnancy and menopause as well as recommended management or treatment options for women with HHT.

Webinar Highlights

  • Hormonal changes in women through puberty, pregnancy and menopause.
  • Pregnancy complications, prevention of complications, and recommended management during pregnancy in women with HHT
  • Birth control in women with HHT
  • Post-menopausal management of HHT-related symptoms and complications
  • HHT and Pregnancy handout and Website links provided in the webinar

ACT NOW

  • SHARE this information and webinar link with your family members affected by HHT

Cure HHT

Cure HHT is the cornerstone of the HHT community, advancing one common hope - to give those affected by HHT a chance for a normal life. This webinar series is just one of many ways we accomplish this mission. If you found value in this information, please consider making a donation NOW to keep this initiative moving forward. It is through the generosity of our donors that we can continue to provide this valuable education to the HHT community.

 Donate Now Button - Blue Rectangle

 (Please write "webinar" in comment section of donation form)