Legislative Toolkit

Here is all the information, pre-written letters, materials, instructions and training you need to make an effective advocacy effort. There are no excuses - it's time to ACT NOW .

Email Your Legislators

Support the bill and message your legislators  and ask them to co-sponsor the HHT DATA Act.  Just enter your profile information, search for bill HR 1849, click the "support this bill button" and then tell them why.  It only takes 2 minutes!  Have all members of your household do the same thing. Bill Summary

> Get Started

Ask Your Family, Friends, Co-Workers, and Neighbors to Contact Their Legislators

Send your family, friends, co-workers, neighbors, etc. an email with the link above and ask them to support you by contacting their legislators.  Every entry is directly emailed or delivered to your representative. Each office keeps records on how many emails they receive. You don’t have to have HHT to be an advocate.

Follow-Up with Your Legislators

Following-up with your legislator is very important! Check our sponsorship list regularly to see if your representative has joined the Cure HHT mission. If not, get on the phone with them or send them a letter.

> Find Your Senator    >Find Your House Representative

Don't forget to send your Senator or Representative a thank you letter following the meeting. Here are some templates for you to work from!

> Senate Thank You   > House Thank You

District Visits

Meeting with your legislators at home in their district offices is one of the most effective methods in gaining their co-sponsorship. Legislators are usually in their district office when Congress is in recess. Here is a step-by-step to get you started. This is the chance to talk about how HHT affects you and your family face-to-face. Don't forget to bring the HHT DATA Act Factsheet for easy reference.

Get Petitions Signed

  • Gain more support for the HHT DATA Act by organizing a petition drive. The petition could be signed by neighbors, friends, co-workers, associations you are a member of, your church, etc.
  • Once the forms are complete, mail them to Cure HHT and we will personally deliver the petition to the Washington D.C. office of the Legislator.
  • Return to: Cure HHT, P.O. Box 329, Monkton, MD 21111


Additional Legislative Documents

HR 1849 HHT DATA Act Summary 2015

HR 1849 HHT DATA Act Dear Colleague Letter

Sample - Dear Congressman Letter

Senate - Sample Appointment Request

House - Sample Appointment Request

CDC Final Report - HHT June 2009

 Advocacy 101

These resources will help you successfully and locate your Senators and House Representatives as well as guide you through the communication and appointment process.

How a Bill Becomes a Law - written explanation

How a Bill Becomes a Law - chart diagram

Glossary of Congressional and Legislative Terms