January 13, 2016
Presented by: Mark Vieth, Senior Vice President, CRD Associates and Marianne Clancy, Executive Director, Cure HHT
Mark Vieth is a Senior Vice President for CRD Associates, a government relations, public policy and strategic development firm in Washington, DC. Mark has served as the Legislative Advisor for Cure HHT for the last six years. He has helped clients secure federal funding, build new partnerships with federal agencies and mobilize grassroots to advocate for legislation pending in Congress.
Marianne Clancy became the first Executive Director of Cure HHT in 2001. Prior to that, Marianne served on the HHT Foundation board of directors, founded a health care consulting company specializing in trans-dermal drug delivery and oral health care, worked in national health care management with Oral-B Laboratories, a Gillette Company for 14 years, and held faculty positions at Forsyth Dental Center, Boston University and Tufts University School of Dental Medicine.
Join Cure HHT Executive Director Marianne Clancy and Legislative Advisor Mark Vieth for a behind-the-scenes look at the HHT DATA Act. Learn what passage of the act would mean for you, what progress has been made since the act was introduced this past April, the most recent push for senate sponsorship and what you can do to lay down the Cure HHT law.
- Congress 101 - who are your Members of Congress, when are they in session in DC and their home offices, how are their Congressional offices staffed?
- HHT Advocacy Initiatives
- HHT Diagnosis and Treatment Act (H.R.1849) - why is it needed, what does it do, what will happen when it's enacted, what is the status of the bill, and how can I help?
- HHT Legislative Fact Sheet and Website links provided in the webinar
- SEND AN EMAIL to your Members of Congress
Cure HHT is the cornerstone of the HHT community, advancing one common hope - to give those affected by HHT a chance for a normal life. This webinar series is just one of many ways we accomplish this mission. If you found value in this information, please consider making a donation NOW to keep this initiative moving forward. It is through the generosity of our donors that we can continue to provide this valuable education to the HHT community.
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