The Passion to Find A Cure
More than 220 physicians, scientists, nurses, genetic counselors and advocates represented 18 countries at the 11th International HHT Scientific Conference. Over four days, they heard 66 presentations and viewed 96 research posters. This year featured more presenters and research than ever before.
Because we could not possibly include the details of each research presentation, we have provided explanations of the most prominent topics. A full executive summary, written by a committee of scientists, doctors and researchers, will be published in Angiogenesis this fall.
It was truly incredible to see so many brilliant people working toward a single purpose, but perhaps even more impressive than the minds of the researchers is their passion.
Lessons in Clinical Aspects of HHT
One of the chief concerns among HHT patients is quality of life, or the question “How can I lead a more normal life with HHT?” Presentations on new clinical lessons in HHT revealed encouraging progress in the contrast between HHT and general populations. Dr. Claire Shovlin, Director of the HHT Center in London, shared particularly promising research on controlling some of the symptoms of HHT patients often cite as most disruptive to a normal life.
Discussions in Pediatrics
Cure HHT frequently hears from parents in our community who worry about getting their child diagnosed and treated. A discussion of pediatric care showed significant work is being done to ensure children receive the most accurate screening for HHT. Further research revealed doctors are finding ways to predict some of the more serious circumstances faced by children as a result of HHT and its symptoms.
Advances in Diagnostics
Because HHT can affect so many different parts of the body, patients often struggle for years with the side effects of manifestations they were not even aware they had. Several of our researchers presented critical information on advances in the diagnostics of invisible symptoms. These results will lead to faster and more accurate diagnosis of underlying problems, as well as safer methods for identification and treatment.
New Therapies for HHT
Our medical and scientific communities are committed to finding a cure for HHT, but in the meantime they work tirelessly to provide better treatments for their patients. Some of our top doctors shared the results of trials which showed exciting new procedures and drug therapies used to treat HHT. In particular, great strides are being made in the treatment of nosebleeds, one of the most common and disruptive of all symptoms.
Young Researcher Award Winners
Best Scientific Poster
- Xuan Jiang, PhD
- Pernille Torring, MD, PhD
Best Clinical Poster
- Freya Droge, MD
- Marcelo Serra, MD
Best Scientific Oral Presentation
- Valeria Orlova, PhD
- Roxana Ola, PhD
Best Clinical Oral Presentation
- Guiseppe (Joey) Latino, MD
- Veronique Vorselaars, PhD
Travel Award Winners
Frank Baiden, MD (Ghana)
Stephanie Bowers, PhD (United States)
Andrea Cajal, MSc (Argentina)
Dan Dardik, MD (Argentina)
Melissa Dickey, NP (United States)
Pierre Guihard, PhD (United States)
Alexis Harrison, MD (United States)
Anna Hosman (The Netherlands)
Lawrence Huang, PhD (United States)
Saad Ibrahim, MD (United States)
Xuan Jiang, PhD (United States)
Amudhan Jyothidasan, MD (United States)
Yong Hwan Kim, PhD (United States)
Guiseppe (Joey) Latino, MD (Canada)
Ross Allan Mendoza, MD (Philippines)
Roxana Ola, PhD (United States)
Valeria Orlova, PhD (The Netherlands)
Maria Elena Riccioni (Italy)
Lynne Sekarski, RN (United States)
Marcelo Serra, MD (Argentina)
Karen Smith, RN (United States)
Veronique Vorselaars, PhD (The Netherlands)