Cure HHT Legislative Breakthrough

I wDOD-PRMRPould like to update everyone on some exciting news on thelegislative and research front!

Two years ago, the HHT Foundation focused its' advocacy efforts in specific targeted programs to benefit HHT research.  We were successful in obtaining vascular malformations  into the Defense Appropriations bill which includes HHT as a type of vascular malformation.  With the U.S. Senate approval of the Omnibus Appropriations Act on December 13, 2014 and the President’s signature on the bill December 16, 2014, the HHT research community will now be able to compete for research grants from the Department of Defense’s Peer Reviewed Medical Research Program (PRMRP).

The bill includes “vascular malformations” among the list of eligible conditions that can be studied under the PRMRP.  We anticipate that the PRMRP will issue a program announcement on the availability of funding and grant guidelines sometime in February or March 2015.   The total amount of funding is approximately $240MM and 23 diseases, including HHT, are part of this program.  It is important to note that non-U.S. researchers can be the lead on proposals.  Examples can be found http://cdmrp.army.mil/search.aspx

Cure HHT will notify the scientific community as soon as the program announcement is issued. We anticipate that there will be strong collaborations among our global HHT research community.

We have worked hard through the years to get into this program.  Now, the Cure HHT legislative activities are directed to strengthen our presence across several National Institutes of Health (NIH) Institutes and are in the process of putting those plans into place.

To learn more, VISIT the Peer Reviewed Medical Research Program website or READ their FY12 publication.

 

Best Regards,

Marianne Clancy Signature - black

 

 

MARIANNE S. CLANCY, RDH, MPA
Executive Director
Cure HHT

Screen Shot 2014-10-13 at 12.48.22 PM

Giving Tuesday

Don't miss out on making a difference - CALL CURE HHT at 410-357-9932 to provide your credit card over the phone!

Giving Tuesday - world

 

#GIVINGTUESDAY is another opportunity to support Cure HHT and the crucial work of our organization. This year alone we have:

 

# Supported over 1,000 families, totaling approximately 350 hours, who needed assistance with their diagnosis

# Launched our webinar series that has touched over 4,000 people

# Funded $90,000 to support HHT research projects

 

These are only three areas Cure HHT has supported YOU and the HHT community every day.  Visit our website to learn more about how your dollars make a difference.

We know you are receiving a number of requests during this giving season. We appreciate your gift at any level, and we are thrilled to share with you that through December 31, 2014 your donation will be tripled by a generous Foundation supporter. Make your donation today.

Imagine the difference your dollar could make.

 

With gratitude,